Caye Caulker, Belize

In a motorboat skimming across Caribbean

Blue, the shirtless Islander pilots like a pirate.

One-hand on the wheel, he tells today's tourists

Stories of his Great Barrier Reef Boyhood.

Listening with lust, novice young snorkelers

Adjust their unfamiliar equipment, and awkwardly

Await their turn in the turquoise below.

A ceiling fan revolves, whirs, hums, delivers

Tiny breezes across naked bodies, sprawled

Like already forgotten suburbs. From the wall, a lazy

Lizard watches the only movement in the room–

A single thumb stroking a satisfied cheek. Outside,

The regularly-scheduled afternoon thunderstorm

Tells the stirring lovers in Neverland: Go back to sleep.

Escaping through make-believe walls, the sound

Of reggae rhythms, melodies.  At sunset, lured
By unbroken beats, sandaled feet wander from boats
And beds toward the bar. Reefer floats on the sea air.

Barefoot and nearly bare-bodied, American girls sway

With Rasta boys on floors of sand. Sometimes,
They stay, and raise beautiful blue-in-the-moonlight babies.

But most times, they manage to barely not miss the boat,

the bus, the plane, and end up in a gray airport, inadequately
dressed, asleep on a cold seat, waiting for a ride home.

Givingthanks

Most days, I wake up, head directly downstairs, and make coffee. After my cup is poured, I carry it upstairs, throw on some clothes, and pull my hair back into a pony tail. I might brush on some blush, or don some jewelry, but preparing for my day is certainly not slow and deliberate. Getting ready in the morning is a chore. It doesn't help that I really, really hate to get out of bed. Sometimes I wish I could just go to sleep in my clothes; it would make mornings that much easier. No one loves Pajama Day at LSV better than me!

But today, I took the time to take care of myself. While prepping and primping, I realized that I am thankful for:

semi-eyebrows
eyebrow pencils
eyebrow pencil sharpeners

eyelashes
mascara
q-tips

body hair
Quattro razors
warm water

head hair
hair brushes
cute barrettes

Yup, this Thanksgiving, I'm grateful that I am hairy. I'm grateful for all the things I can do to my hair. I'm grateful, even, for the fact that I can remove it.
If I so choose.

me as an ape

Well......, I suppose that "Drawing" could be considered an "Elective", right? And during the time it is being taught to my students by Chris Alvarez in his Second Floor Studio, I could be having my "Planning Time" downstairs at Jive's. An hour and a half twice a week to actually plan lessons, complete with all the espresso and breve I could want!

But, no. Instead, I straddle the horse seat thingy, struggle my 18"x24" pad of newsprint onto the easel, embrace my unforgiving Sharpie, and ready myself to listen to the Master.

Drawing. It's something I've never been able to do. Never done. Never learned.

The 90 minutes spent drawing on Tuesdays and Thursdays is the reward I get for planning outside of school hours. I also, of course, hope to show the kids that learning is a life-long journey...... we say it, but do we really model it?

Anyway, Chris's homework was to draw a self-portrait of our face, while looking in the mirror, in a single-line contour drawing. Here's how mine started. Feel free to laugh! I did! Then Bennett came to check it out, and he laughed, too! :)



Then Bennett and I had a conversation that went like this:



And so I continued:



I'm going to try it again, and this time, start at the eyes (the worst part, in my opinion). I'll put on some music as well. And I'll slow down.

I hope, in the words of Mr. Chris, to "fail better".

unsolicited advice from a woman with no daughters

a poem for Audrey, Meme, Ruby, Finn, and Sophia


they'll say
"Just Be Yourself"
as if that were THE ANSWER
but
i say
"Be your Many Selves"
keep your closet full of the different
yous and change as often as you like
accept and love them all
your girl friends will be
your source
for everything
this never changes.

a bath and an artichoke

I wish I could express to you how honored I felt to bathe Phid, with the help of the CNA, of course, in the monster jacuzzi tub they have at Pikes Peak Hospice. It is an amazing piece of machinery. To see it in action made me momentarily super grateful to be living in the first world in the twenty-first century.

While I was washing her hair, trying to be gentle, she said, "Oh, Sue, give it a good scrub!" So I dug my fingertips into her scalp, and massaged the heck out of it. Then I rinsed off the shampoo with the shower nozzle and watched the water cascade over her face and neck and shoulders and I could imagine how cleansing that must feel. After a good long bubbly bath, and a washing of the feet, we swaddled her in about a dozen warm blankets, wheeled her back to her room, and applied lotion all over her 83-year-old body. The CNA (also named Sue) and I worked well together, as she is one of those people who recognizes that she is not just doing a job, but performing a sacred duty.

After Phid was all tucked into her fresh linens (the bed seemed to miraculously make itself while we were in the tub room) and about to slumber off, she opened her eyes, looked straight at me, and asked, "What about my arteechock?"

Crap!

She had mentioned wanting an artichoke twice before, and we just hadn't done it yet! I told her I'd go right away and make her one. I'd be back at 6:30. I bought three artichokes at Safeway, while a friend explained on the phone how to prepare and cook them. I had never cooked an artichoke before.

At 6:15 I called her and she answered with a smile behind her voice: "Artichokes take longer than you thought, don't they?" Yes, they do. I told her I was picking Sarah up at 7:15 and I would be there at 7:30 with her artichoke and her daughter!

Sarah and I "set the table", placed the mayonnaise and melted butter nearby, and let her at it. It was a pleasure to watch her hands, as they nimbly performed the duty they had obviously done so many times in the past. Sarah and I shared another. Then John and the boys showed up with grilled Korean steak from a neighbor's barbecue. I tore some of the tender meat into little pieces for her, and she devoured them ever so slowly. Then the strawberries she had ordered three hours ago finally arrived!

After living on toast, a few bites of tomato soup and a few spoonfuls of pomegranate applesauce for a couple of days, this meal was a veritable feast!

the end

So chemo is over. Twelve infusions and 28 weeks later, I can safely say I have arrived. Still intact. A bit more fragile. A bit stronger.

I had my first experience of running into someone I hadn't seen for awhile, and giving the abridged version when she asked me how chemo went. Yeah, I was hospitalized with a neutropenic fever over Christmas break, had severe neuropathy, shingles, and lymph cording... it was hell, but I made it.

It was strange, looking back on it like that. The day was sunny, I was strolling rather happily around the neighborhood taking in the tulips, and the fuzz on my head was as downy as a newborn chick. All of the sudden, it seemed as if I had awoken from a really bad dream, the details a bit hazy.

And now to the most Frequently Asked Question That I Am Getting Tired Of Answering. It comes in various forms.

Is it all gone now?
Did they get it all?
So, there's no more cancer?

I know what they mean. They want to know if I'm going to live. And for how long. Cancer is all about "how to talk around death". I appreciate most the people who have understood that to be diagnosed with cancer is to look mortality in the face and have a serious come-to-Jesus talk.

Anyway, here's the answer, as well as I can explain it:
First, the data, from a handy computer program that takes into account your age, general health, size and grade of tumor, and number of lymph nodes affected: With no treatment except surgery, I would have had a 62% chance of being alive with no recurrence in ten years. With chemo, it brought it up to 82%. If I choose to take Tamoxifen, it will bring that up to an 88% chance of seeing the year 2019. Chemotherapy doesn't "get it all". It gets about 99.9% of any cancer cells that might have leaked out of the tumor into my lymph system. It only takes one rogue cell, traveling around and deciding to lodge itself in my bones or lungs or liver X number of years in the future, for the cancer to return. There are no guarantees. It will never be "all gone".

I am an idealist at heart, yes. I see the bright side of just about every godddamn problem there is. I believe the best about everyone. Pollyanna should have been my middle name. If I had to, I could find something positive to say about cat poop!

But that doesn't take away the fact that there's a 12% chance that I won't see my youngest son off to college. You see, this is where cancer takes your mind in the darkness. It's not to be dwelt upon, but it is also not to be ignored.

When one is in the middle of treatment, there is focus, purpose, a singular task. Now that I have been released from chemo and have more decisions to make (more on that later), I find myself in a strange tormented limbo once again.

number 12

Today, 4/20/09, at 4:20 PM, the IV machine beep-beeped for the last time. I thought I would cry, but I didn't. The boys were all there, I had had a good two-hour nap in the chair, and I just wanted the hell out at that point. I told the nurses no offense, but I never wanted to see them again. (I'm sure they've never heard THAT one before!)

When John and I arrived this morning at 9:15 AM, I was weepy without end. Brownie, 92-year-old Brownie, who volunteers in oncology, who brings me warm blankets and hot lunch and cold applesauce, and, when asked the secret to a long life doesn't hesitate when she answers: "I guess I just don't worry very much"....... anyway, Brownie was the first to say good morning, and unfortunately she got the brunt of my didn't-get-enough-sleep-last-night tears.

Gunda took my weight and blood pressure, and Susan drew my blood. That hour and a half wait for the lab reports was one of the longest of my life. Luckily, all was well, and my twelfth chemo infusion was under way. After some IV Pepcid, steroid, and Benadryl, the last bag of Taxol was hung. At that point, I knew that freedom from having my port poked was a mere three hours away. I slept through most of it, thanks to the Benadryl.

I became particularly close to one nurse, Anne. She was the witness to several of my breakdowns, as well as the one who broke the news to me that Matt, a 20-something young man I sat next to on occasion, had died. When she hugged me on the way out today, I did shed a few tears, and told her that I couldn't have done it without her.

That evening, Grant, Bennett, John, and I ate sopapillas from La Casita and drank Ibarra Mexican Hot Chocolate around the fire pit, each making a little celebratory, ceremonial toast. Then Grant and Bennett light sabered around the backyard. How I love watching them become Jedi in their minds and bodies and souls. It was after 9 PM before we finally came in; if you know me, letting my kids stay up that late on a school night is virtually unheard of! But I've learned a lot, and one of the things I've learned is that special events allow us all to break the rules. I've also learned how easy it is to take a sick day (thanks Klayton and Suzanne!), and that I should do it more often.

So I've come to end of this chapter, and am going to close the book for awhile. There will be more..... radiation, hormone therapy, lab tests for ever and ever, but I'm letting all that go for now. At least for the couple three weeks until radiation begins.

For now, here's a toast to 82%! According the stats, I have an 82% chance of living 10 years with no relapse. I'm going to make sure and take Brownie's advice, and not worry about the other 18%!

At about 9:15 PM, 12 hours after arriving in oncology this morning, we popped the final balloon:

Cancer Snuck In

In her black overcoat
nudging open the door
like a stealth robber
and she has been here ever since.

she changes everything
crowds the bookshelves with unwanted binders
her hand hovers over the jewelry box;
she will steal now, she says;
just like she stole your mother’s

Tonight, she climbs
into the shower and taunts, “Truth or Dare?”
before daring me to
look down at the truth
later, she crawls under the covers
between us
stripping sexy from the lexicon
and whispering whatifs
in my ear

Even as I sit here,
she lurks behind me
threatening to
invade every conversation
and bends over my naked dome
and quietly demands,
From now on,
you write about me.

[using the poem “Death Barges In” by Kathleen Sheeder Bonanno as a template]

stephen colbert on motherhood

Being a mom is no picnic. Raising the kids is the mother's responsibility. It's a thankless, solitary job, like sheriff or Pope.

On the plus side, they do get to wear cool hats.

seven random shingly things

1. I always thought shingles was an old-lady disease, on account of the fact that the only person I ever knew who had it was my grandmother. Turns out LOTS of people I know have had it! And they're not old.

2. Because I have shingles, chemo has been postponed AGAIN!

3. Tomorrow should have been my last round, number 12, if all had gone as planned. But because of all the delays (neuropathy, liver functions, low WBC, and now shingles) I still have three left. That's six more weeks.

4. They hurt. Kind of like having a knife jabbed into your back.

5. I'm banned from hot springs and swimming pools, two of my most favorite places.

6. I don't really even care anymore about chemo being postponed, or not being able to soak at Mt. Princeton. I'm not sure if that means I'm less depressed, or more depressed.

7. I am learning to live beyond "should have" and "as planned".

navasana

there's always
movement
the leaving and the returning
through doors
without locks
never enough kisses
welcome....farewell...come home....see you soon...goodbye.....

boat. stop. moment.





(photos by Kat Tudor)

penalty

The most common question asked by well-meaning friends is, "How much longer?" or sometimes it's, "When are you going to be done?" They mean treatment, of course, but my brain always turns to the long haul, the forever, because you're never done fighting, once you have cancer.



As for the treatment, I am sick and tired of not knowing the answer to those questions. There are too many uncontrollable variables. This time, it was my liver. Yesterday, it threw me a "delay of game" penalty. I arrived at oncology with my sister-in-law Gwen (all the way from Ithaca, NY), mentally prepared and with a bag full of diversions. I was ready for round number nine, only to be told that my chemotherapy appointment had been canceled, and.... "Didn't anyone call you?"

No! They didn't!

My brother and family are visiting from New York! It's a holiday! Everyone else is skiing! I could have gone too! Why didn't anyone call me Friday to tell me my lab results!? (After I had calmed down a bit, I apologized to all the other chemo patients for my outburst, which I'm sure contained many a swear word.)

So Gwen and I headed up to Monarch on a bluebird day to join my brother, my husband, my niece, and my sons, for a day (half-day by the time we arrived) of skiing and then relaxing at Mt. Princeton Hot Springs. Was it better than sitting in the chemo chair all day? In the words of my 9-going-on-13-year-old son, "Well, duh!"

But would I rather have been in the chair with blood poison number nine?

"Well, duh!"

henna!

all things considered

They may simply look like bottles and pills to you, but to me, they have become a life-saving ritual.

Every morning and evening, the same. Swallow 21 pills. (For those of you watching the numbers, that's 42 a day, my age... again) Then there's the flaxseed-grinding, the smoothie-blending, the green-drinking, and the tincture-swilling.

The natural-colored herbal gel caps are from my neighborhood witch. The unnatural-colored yellow pills are from my oncologist. I used to house them in different places in my kitchen, until I realized that they all belonged together.
What's inside all those gel caps, you ask? Here's a sampling of some of their exotic and everyday ingredients:

Manchurian spikenard
Turmeric
Quercetin
Luo han gou
Indian Gooseberry
Boron
Vanadium
Goat weed
Vitamin B6
Royal jelly
Korean ginseng
Suma
Rosemary
Ashwagandha
Black pepper
Cordyceps mushroom
Eleuthero root and leaf
Japanese Knotweed
Licorice
Holy Basil
Bromelain
Creatnine
Chromium

In addition to swallowing all those pills, Heide also has me drinking a green concoction composed of brussel sprouts and kale and cabbage and spinach. It's lemon-lime flavored. Really. The smoothie protein powder she gives me contains (gasp!) colostrum! (It's from cows, not humans, of course, but still... weird.)

The yellow ones you see are prescribed Potassium and Protonix. And then there are the toughest and cruelest of them all, the ones you can't see here, the chemo drugs: Adriamycin, Cytoxin, Taxol.

The way I look at it, I've got to use everything under the sun available to me.

As a teacher, I've drawn from diverse sources: ITIP, Kagan, Love and Logic.

But those are all systems; it's the people, of course, that have had the most influence on who I am as a teacher.

I have had many guiding forces, from my nazi-like advisor when I was a student teacher, to my paternal first grade teacher, and many more in between. Mrs. Phelps (advisor) taught me how to direct instruct and maintain discipline, and kept her kids loving her and learning much with a strange but effective mix of toughness and love. Mostly, she demonstrated the self-sacrifice and hard work it takes to make sure every single kid "gets it". Mr. Witham (first grade teacher) allowed me to call him "daddy" (my parents were recently divorced), told fractured fairy tales from his imagination before they were popular in books, and made everyone feel safe. I can't remember a word of criticism ever leaving his lips. (My mother sent me his obituary when I was 24 and in my first year of teaching. When I read that he had died of AIDS, I cried like a baby).

I believe what makes me such a great teacher (humble, too, aren't I?) is that I draw upon a variety of teaching techniques and influences, as long as they feel mostly true to me. If it works, use it! We get so bogged down in the "right way" of teaching or parenting or medicating that we lose sight of the ultimate goal. And as every parent knows..... every child is different. As every doctor knows.... every patient is different. What works for one might not necessarily works for another.

I guess that's why I instinctively mistrust parenting experts, politicians, priests and educational consultants (yes, especially them..... and their publishing companies). They are only selling one product, it's the answer, and you have to believe in it. Period.

I don't buy it. And so my arsenal of healing includes it all. Chemo, pills, tinctures, MRI's, EKG's, plants from around the world, yoga, flaxseed, and $5,000 shots of Neulasta.

All things considered, the most important factor, I suppose, just like in teaching, is the people. That'd be you. Thanks for being a part of my treatment plan!

"the blood is the life!"

Blood.  The Elixir of Life.  Always moving, it carries oxygen through our veins, flows out in menses, brings color to our cheeks, makes sex enjoyable, keeps us warm, and is always red, never blue.  I will never, ever again take it for granted.

I understand now, the Vampire's need.  For I have sucked another's blood and have found it to be to my liking.

The Christians drink, symbolically anyway, the blood of Christ.  Catholics take it a little further. I have often wondered about this paradoxically shared love of blood among seeming opponents. Perhaps Vampires and Christians are really not that different after all. 

I have just spent three nights in a hospital bed.  I found myself there after I finally realized on the day after Christmas that the way I had been feeling for the past couple of days was definitely not normal, even for a chemotherapy patient.  Unable to stand in the shower for any length of time, with chills that wouldn't end, and an inability to accomplish even simple tasks, I finally checked my temp. (102.9 at its highest) and called the doctor.  

Which landed me in the hospital for three nights, due to having next to zero white blood cells, and a dangerously low red blood count.  There I lay, hooked up to IV antibiotics, watching Gremlins and Westside Story and other great classics on the AMC, playing Quiddler, and finishing a fantastic novel.

On the third day, they gave me two blood transfusions.  I immediately felt like a new person, with a new life. Only slightly more blood-thirsty.  

So if you see me on some dark night, staring at you rather hungrily, please take precautions.  

Consider yourself warned.

(Title quote from Bram Stoker's Dracula)

Does Kelly Corrigan miss anything?

I don't think so.

Consider this my early Solstice gift to all the amazing women I know: to those who sit at my kitchen table, those who live across oceans, those who have become my friends because our children were friends, and those who I know only through blogging:



If you want to attempt to understand what it might possibly be like to experience the loss of one's hair, you can also watch her read the chapter from her memoir, The Middle Place, on Going Bald. It's chapter 13. Another reason to love that number. I've tried to read stories of breast cancer survivors, but so many of them fail me, for some reason or another. Hers is the first one that has resonated; that has made me smile in self-recognition.

from somewhere safe

Let not your heart be disturbed.

Do not fear this sickness, nor any other sickness or anguish.

Am I not here, who is your mother?

Are you not under my protection?

Am I not your health?

Are you not happily within my fold?

What else do you wish?

Do not grieve nor be disturbed for anything.

-Our Lady of Guadalupe

today is her day

yoga and poetry before laundry

Yoga And Poetry Before Laundry

how did she know

to come in from the gray 

looking like an orchid

and carrying a basket full of

purple mirth?

she told me I had an eye in the back of my head

i realized later how cool it was to have just one

i mean, no one ever says, “she’s got an eye in the back of her head.”

a violet light pulses gently 

breathing the future

while behind, a blue net waits quietly 

to catch the past

cats do not just like yoga

they are yogi

in continual asana

isn’t everything?

even

this

po

e

m

?

our daily rumi

The beneficent and marvelous Kat Tudor came over to my house today for a private yoga lesson. How this came about, and what happened during our first session, is another one of those serendipitious occurrences that make me sometimes believe the universe is not chaotic, but rather ordered and purposeful.

First, I participated in a human chanting Yogic Spiral with Kat, and then interviewed her for Colorado Culture Cast. Must see!

A few days later, a friend sent me a magazine article about the benefits of a private yoga instructor to help heal from breast cancer.

Later that night, in a pile of scattered papers, I found a postcard of Kat's that l had picked up at the Spiral event. It said she was now offering private yoga lessons. Hmmmmmm.........

The area under the right armpit where I had 11 lymph nodes removed is still painful. Whenever I reach for something with my right hand, everything stretches and pulls uncomfortably. My first round of chemo made me feel sick beyond belief for several days. My spirit was temporarily crushed. I knew I needed to do something for both my body and my soul.

I found it today.

After I was relaxed and breathing and had done this amazing opening the heart pose that made me feel both vulnerable and powerful, Kat asked me for my birthday. I told her. She picked up this book, opened to a page, paused a moment, and then said, "Oh, this one. I guess I'll just have to read it then."

January 11
Backpain

Muhammad went to visit a sick friend.
Such kindness brings more kindness,
and there is no knowing the proliferation from there.

The man was about to die.
Muhammad put his face close and kissed him.

His friend began to revive.
Muhammad's visit re-created him.
He began to feel grateful for an illness
that brought such light.

And also for the backpain
that wakes him in the night.

No need to snore away like a buffalo
when this wonder is walking the world.

There are values in pain that are difficult
to see without the presence of a guest.

Don't complain about autumn.
Walk with grief like a good friend.
Listen to what he says.

Sometimes the cold and dark of a cave
give the opening we most want.

-Rumi

It was just so wickedly eerie and I shed tears of amazement and I think we were both just blown away by the power and perfection of it. I think I have a new favorite poet. Say goodbye to Our Daily Rilke.

feelin' bluevy

These first two weeks of October have passed by in economic crisis and bullshit politics. But they have also passed by in perfection. The Aspens and Cottonwoods have turned yellow and pink. My friends just got married in a uniquely symbolic ceremony at Mt. Princeton Hot Springs. The weather is such that you get to put on funky tights in the morning, then take them off and put on a tank top at noon. I chanted in a giant human yogic spiral and made a rock spiral sculpture with the Spiral Scouts. Halloween costumes are in the planning! We have all settled into our school routines. I have been volunteering in the boys' classrooms once a week, and am remembering what I loved so much about teaching children.

For the past few weeks, I have been living in a blissful denial. A sort of post-surgical-pre-chemical limbo. Now, on Columbus Day, I am about to set out and explore a new world.

In about an hour, I will have a needle placed into the port on my left side, and Adriamycin and Cytoxan will begin dripping into my body. Healing poisons. In about three days, I may (or may not) feel like shit. In about seven days (because of risk of infection), I will not be able to go contradancing (see next post below!) In about three weeks (just in time for Halloween!) I will lose my hair.

It is both a terrifying and a liberating feeling, this idea of losing one's hair. Here's how I chose to deal with it.

First, the cut:











Then the color:

















Finally:




My friend's daughter, aged 12, asked me yesterday, "So why did you dye your hair blue?"

"Well, I'm going to be losing it in a few weeks, so...."

(Interrupting) "You just figured what the heck right?!"

You got it, girl!