I've been away for awhile.
It's good to be back.
I'll write more later.
Sunday, November 15, 2009
Sunday, October 11, 2009
Tuesday, September 22, 2009
Monday, September 14, 2009
a free grocery store without any meat
School has begun in earnest. For all of us. The mornings are chilly, the afternoons warm. Camping requires every piece of clothing. I have had a hard time in 2009 accepting the onset of autumn. Most years, it is a welcome change; this year, not so much.
I am no longer free to get on my pink Cruiser at any time of the day, and pedal to the garden. Now, the garden has become an errand, a location that we "stop by" on our way to someplace else.
Nevertheless, yesterday, on our way home from Up (an absolute DELIGHT!), we dropped in on the Old Colorado City Community Garden to inspect our plot. The first thing to catch my eye were the pumpkins! In July, they were nearly invisible, green-striped globes hidden by monster-sized leaves; now, they were bursts of orange through withering brown. Next - the Brussels sprouts! Petite little adorable things.... they make such a satisfying *snap* when removed from the stalk. Finally - the tomatoes. Now... that whole idea about pulling a ripe tomato off the vine and simply biting into it has no appeal to me whatsoever. But leaning over our six tomato bushes, inhaling, and reaching in for the prize, is like some kinda magic.
As my sons and I were harvesting (yellow beans, purple beans, onions, beets, broccoli, carrots, several varieties of peppers, Brussels sprouts, tomatoes, basil, thyme):
Me: This is better than the grocery store.
Bennett: Yeah, it's like a free grocery store without any meat.
Tonight, I turned this....

into this.
I am no longer free to get on my pink Cruiser at any time of the day, and pedal to the garden. Now, the garden has become an errand, a location that we "stop by" on our way to someplace else.
Nevertheless, yesterday, on our way home from Up (an absolute DELIGHT!), we dropped in on the Old Colorado City Community Garden to inspect our plot. The first thing to catch my eye were the pumpkins! In July, they were nearly invisible, green-striped globes hidden by monster-sized leaves; now, they were bursts of orange through withering brown. Next - the Brussels sprouts! Petite little adorable things.... they make such a satisfying *snap* when removed from the stalk. Finally - the tomatoes. Now... that whole idea about pulling a ripe tomato off the vine and simply biting into it has no appeal to me whatsoever. But leaning over our six tomato bushes, inhaling, and reaching in for the prize, is like some kinda magic.
As my sons and I were harvesting (yellow beans, purple beans, onions, beets, broccoli, carrots, several varieties of peppers, Brussels sprouts, tomatoes, basil, thyme):
Me: This is better than the grocery store.
Bennett: Yeah, it's like a free grocery store without any meat.
Tonight, I turned this....
into this.
Friday, August 28, 2009
Thursday, August 27, 2009
i'm playing the trombone!
So there I am, standing in the kitchen trying to clear off some counter space so I will have room to prepare the lasagne that I've been planning on making now for about a week. It's that after school time, when I make sure the boys have had a snack, and then Grant buries his nose in a book and Bennett wanders outside with a pocketknife and a stick.I knew Grant was having his first band practice that day, and I also knew that he was all set on playing the flute. Or so he told me. But on this particular afternoon, Grant wandered into the kitchen, and the conversation went something like this:
Me: Hey kiddo. Did you have band today? How'd the flute playing go?
Grant: Oh no Mom, I'm not playing the flute; I'm playing the trombone!
I just started laughing... poor kid, he thought I was laughing at him. It was just so unexpected, and the instant visual of my firstborn in the living room with a slide trombone in his hand just cracked me up! Parenting is an adventure, and you just never really know where it is going to take you.
After I calmed down, he explained to me that the band teacher had pulled out the instruments and let the kids try them all. (Thank god the piggy flu hasn't hit quite yet, I suppose, but still... eewww). Grant said he couldn't make a single sound come out of the flute, but "I can do this really well!" and he puckered his lips and made that raspberry sound we use on babies' bellies. I'm sure there's a more technical term for it.
Yeah, upon hearing him, I laughed again, realizing that the trombone really is the perfect instrument for him. I just wonder how he's going to get it to and from school on his bicycle.
Friday, July 31, 2009
happy frickin' anniversary
June 23, 2009
Last day of a 30-day course of radiation. No Problem! Piece o' cake compared to chemo! Feel great! Garden sprouts! Hair and a Tan! New pink bicycle! Summer! Dancing!
REWIND (cue scratchy backwards record sound)
July 24, 2008
Husband informs me (as soon as I am all happy-dreamy-post-orgasmic) that he felt an abnormal lump in my breast while we were having sex. He shows concern. I choose to go into instant denial, and don't even dare look at or touch myself until the next day.
July 25, 2008
Leave for a two-night camping trip near Princeton Hot Springs for the weekend. Spend the time soaking and hiking and trying not to touch it or to worry. It's the weekend, and figure can't get in to see the doc 'til Monday anyway. Still in denial.
July 27, 2008 - late Sunday night in my own bed after two nights of camping
Cry. Because I know.
July 28th - early Monday morn
Call to make an appointment with Dr. Zirkle, my young and handsome PCP. He's not there, so I see a woman NP who fondles my right breast with a questioning look on her face. Don't remember her name, but she makes an appointment straight away for a diagnostic ultrasound the next day. Call Sara on the way home. Cry. Pick up boys at the Burkles for what they thought was a playdate.
July 29, 2008
Diagnostic ultrasound. Suzanne shows up. I thought I wouldn't need anyone. It's just a little test, after all. Glad she's there, after all.
"Right breast diagnostic ultrasound dated July 29, 2008, shows a dense breast parenchymal pattern with an abnormality corresponding to a 2.1 cm cm in greatest dimension, hypoechoic lesion with irregular margins." Oh crap, a whole new vocabulary to learn; the exact one I never ever wanted to learn. They want to schedule a needle biopsy next week... the only way to know for sure if it is cancerous or not.
Hysterically, tearfully, tell whoever will listen that I DON'T HAVE TIME! BY THE TIME MY MOTHER WAS DIAGNOSED, SHE WAS AT STAGE 4! DON'T YOU GET IT PEOPLE?! I DON'T. HAVE. TIME! Get biopsy scheduled for 31st.
Dammit, I think to myself, here we go...
July 30, 2008
Wait.
I decide to tell no one else until I get the biopsy results...no sense worrying others about something that may turn out to be nothing. There's a pretty good chance, I keep telling myself, that it might be, you know, like a cyst or something.
Get mad at husband for telling his mother, because I don't want her to worry about me. Then quickly realize that he needs someone to tell as well.
July 31, 2008
I return for an "uncomplicated" ultrasound-guided needle biopsy. John comes with me this time. I learn another new vocabulary word: Axilla. Think it would make a great name for a Sci-Fi badass female character or a Derby Dame. Learn it's really just a complicated word for "armpit". Still think it would make a great name.
July 31-August 5th
Wait.
Try to do the laundry and talk with friends and read to the boys before bed. Every day is an eternity. I remember a band called 'Til Tuesday. I just have to make it 'til Tuesday. Because that's the day I'll get the results.
Spend my waiting days with a 2 cm secret, a stoic smile, a welcoming kitchen table and an even-keeled telephone voice. I am not one for holding in anything, so this is a particularly difficult time for me. For once, I ask more questions of others, instead of talking about myself. Lying in bed at night, I barely hold on to my sanity. Give me chemotherapy any day over this hell of not-knowing!
Saturday, August 2nd, 2008
The second anniversary of my mother's death from breast cancer. I'm invited to what sounds like a lovely garden party, but I just can't make myself go. I can't believe that the world keeps spinning, that people keep going to work and making love and having parties. It just doesn't seem right.
Morning of August 5th, 2008. Tuesday.
I know the moment the nurse opens that door into the waiting room and calls my name. I can see it in her face, hear it in her voice. John and I stumble through the door, take a thousand steps down the hall, and are ushered into a tiny conference room on the right. The wonderful, motherly, optimistic ("this doesn't really look like cancer") radiologist who performed the biopsy all those years (6 days!?) ago isn't in the office today, so a man who knows absolutely nothing about me presents me with a huge white binder and these words: "You have invasive ductal carcinoma." Just like that. They don't even say cancer. Bastards.
Afternoon of August 5th, 2008
In order to occupy my mind, I try and accomplish some menial household tasks. I empty the dishwasher, slowly, dish by dish, taking note of each one, how it feels in the hand, how it shines in the light. After that, I simply end up pacing the house or lying on my bed. Doing "normal" things takes on a surreal edge. A hyper awareness permeates my every move, every step, every breath, every word. I am restless, and in shock, and don't know what to do with myself.
Evening of August 5th, 2008
I call Mike Carsten to see if he is working. He is. I ask him to make me a Cosmo and tell him I will be there soon. John stays home with the boys. I predict this will be the first time I ever sit at a bar alone and tell the bartender my problems. When I walk in to 15C, I am somewhat relieved to see Bettina and Aaron sitting at the bar. I sit down in front of my drink, and ask Bettina for a cigarette. After a slow sip and a deep inhale, I look at Mike across the bar and utter, matter-of-factly, "I have breast cancer." That singular moment will be etched in my brain forever.
Sara shows up. I drink another pink Cosmo. Bettina tells me I have a "pass", so I smoke one more, or maybe several more, of her pink Camels.
August 6, 2008
My first day of school. I am hungover and miserable and sitting in a meeting at 8 am. At least my boss knows, as Sara had the forethought to call her from the bar last night and tell her.
I want to drink and throw beer bottles out into the street and hear them crash.
July 31, 2009
So you see, here we are now, exactly a year later. From the end of radiation until about a week ago, I felt like a million bucks. Reborn. Then last week, emotions (but not necessarily memories) began surfacing, unbidden, and at inopportune and unexpected times.
Perhaps I felt them more because we were on vacation, relaxed, and I was more in tune with myself and not engaged in the daily duties of home.
In the "tummy of the Earth" (as Grant called it-otherwise known as Wind Cave), my body went into shock, and I cried for the stillness and the darkness of it all, yet happy in the knowledge that our complex planet has no concern for our trivial human problems.
My anger resurfaced for no apparent reason one morning at the Coach House (John's childhood vacation home in Wisconsin). In the process of making scrambled eggs, I went out onto the porch and threw an egg at a tree with every bit of strength I had. To hear it splat gave me great satisfaction!
While riding on country roads, I felt again that hyper awareness, that surreal edge. I felt as if I could ride forever among the cornfields and silos and old cemeteries.
Now I'm home. The summer is coming to a close, and another school year is about to begin. My mind and body are sorting out the events of the past year.
Welcome to Year 2.
Last day of a 30-day course of radiation. No Problem! Piece o' cake compared to chemo! Feel great! Garden sprouts! Hair and a Tan! New pink bicycle! Summer! Dancing!
REWIND (cue scratchy backwards record sound)
July 24, 2008
Husband informs me (as soon as I am all happy-dreamy-post-orgasmic) that he felt an abnormal lump in my breast while we were having sex. He shows concern. I choose to go into instant denial, and don't even dare look at or touch myself until the next day.
July 25, 2008
Leave for a two-night camping trip near Princeton Hot Springs for the weekend. Spend the time soaking and hiking and trying not to touch it or to worry. It's the weekend, and figure can't get in to see the doc 'til Monday anyway. Still in denial.
July 27, 2008 - late Sunday night in my own bed after two nights of camping
Cry. Because I know.
July 28th - early Monday morn
Call to make an appointment with Dr. Zirkle, my young and handsome PCP. He's not there, so I see a woman NP who fondles my right breast with a questioning look on her face. Don't remember her name, but she makes an appointment straight away for a diagnostic ultrasound the next day. Call Sara on the way home. Cry. Pick up boys at the Burkles for what they thought was a playdate.
July 29, 2008
Diagnostic ultrasound. Suzanne shows up. I thought I wouldn't need anyone. It's just a little test, after all. Glad she's there, after all.
"Right breast diagnostic ultrasound dated July 29, 2008, shows a dense breast parenchymal pattern with an abnormality corresponding to a 2.1 cm cm in greatest dimension, hypoechoic lesion with irregular margins." Oh crap, a whole new vocabulary to learn; the exact one I never ever wanted to learn. They want to schedule a needle biopsy next week... the only way to know for sure if it is cancerous or not.
Hysterically, tearfully, tell whoever will listen that I DON'T HAVE TIME! BY THE TIME MY MOTHER WAS DIAGNOSED, SHE WAS AT STAGE 4! DON'T YOU GET IT PEOPLE?! I DON'T. HAVE. TIME! Get biopsy scheduled for 31st.
Dammit, I think to myself, here we go...
July 30, 2008
Wait.
I decide to tell no one else until I get the biopsy results...no sense worrying others about something that may turn out to be nothing. There's a pretty good chance, I keep telling myself, that it might be, you know, like a cyst or something.
Get mad at husband for telling his mother, because I don't want her to worry about me. Then quickly realize that he needs someone to tell as well.
July 31, 2008
I return for an "uncomplicated" ultrasound-guided needle biopsy. John comes with me this time. I learn another new vocabulary word: Axilla. Think it would make a great name for a Sci-Fi badass female character or a Derby Dame. Learn it's really just a complicated word for "armpit". Still think it would make a great name.
July 31-August 5th
Wait.
Try to do the laundry and talk with friends and read to the boys before bed. Every day is an eternity. I remember a band called 'Til Tuesday. I just have to make it 'til Tuesday. Because that's the day I'll get the results.
Spend my waiting days with a 2 cm secret, a stoic smile, a welcoming kitchen table and an even-keeled telephone voice. I am not one for holding in anything, so this is a particularly difficult time for me. For once, I ask more questions of others, instead of talking about myself. Lying in bed at night, I barely hold on to my sanity. Give me chemotherapy any day over this hell of not-knowing!
Saturday, August 2nd, 2008
The second anniversary of my mother's death from breast cancer. I'm invited to what sounds like a lovely garden party, but I just can't make myself go. I can't believe that the world keeps spinning, that people keep going to work and making love and having parties. It just doesn't seem right.
Morning of August 5th, 2008. Tuesday.
I know the moment the nurse opens that door into the waiting room and calls my name. I can see it in her face, hear it in her voice. John and I stumble through the door, take a thousand steps down the hall, and are ushered into a tiny conference room on the right. The wonderful, motherly, optimistic ("this doesn't really look like cancer") radiologist who performed the biopsy all those years (6 days!?) ago isn't in the office today, so a man who knows absolutely nothing about me presents me with a huge white binder and these words: "You have invasive ductal carcinoma." Just like that. They don't even say cancer. Bastards.
Afternoon of August 5th, 2008
In order to occupy my mind, I try and accomplish some menial household tasks. I empty the dishwasher, slowly, dish by dish, taking note of each one, how it feels in the hand, how it shines in the light. After that, I simply end up pacing the house or lying on my bed. Doing "normal" things takes on a surreal edge. A hyper awareness permeates my every move, every step, every breath, every word. I am restless, and in shock, and don't know what to do with myself.
Evening of August 5th, 2008
I call Mike Carsten to see if he is working. He is. I ask him to make me a Cosmo and tell him I will be there soon. John stays home with the boys. I predict this will be the first time I ever sit at a bar alone and tell the bartender my problems. When I walk in to 15C, I am somewhat relieved to see Bettina and Aaron sitting at the bar. I sit down in front of my drink, and ask Bettina for a cigarette. After a slow sip and a deep inhale, I look at Mike across the bar and utter, matter-of-factly, "I have breast cancer." That singular moment will be etched in my brain forever.
Sara shows up. I drink another pink Cosmo. Bettina tells me I have a "pass", so I smoke one more, or maybe several more, of her pink Camels.
August 6, 2008
My first day of school. I am hungover and miserable and sitting in a meeting at 8 am. At least my boss knows, as Sara had the forethought to call her from the bar last night and tell her.
I want to drink and throw beer bottles out into the street and hear them crash.
July 31, 2009
So you see, here we are now, exactly a year later. From the end of radiation until about a week ago, I felt like a million bucks. Reborn. Then last week, emotions (but not necessarily memories) began surfacing, unbidden, and at inopportune and unexpected times.
Perhaps I felt them more because we were on vacation, relaxed, and I was more in tune with myself and not engaged in the daily duties of home.
In the "tummy of the Earth" (as Grant called it-otherwise known as Wind Cave), my body went into shock, and I cried for the stillness and the darkness of it all, yet happy in the knowledge that our complex planet has no concern for our trivial human problems.
My anger resurfaced for no apparent reason one morning at the Coach House (John's childhood vacation home in Wisconsin). In the process of making scrambled eggs, I went out onto the porch and threw an egg at a tree with every bit of strength I had. To hear it splat gave me great satisfaction!
While riding on country roads, I felt again that hyper awareness, that surreal edge. I felt as if I could ride forever among the cornfields and silos and old cemeteries.
Now I'm home. The summer is coming to a close, and another school year is about to begin. My mind and body are sorting out the events of the past year.
Welcome to Year 2.
Labels:
alive,
earth,
friends,
his mother's,
mr. suesun,
my mother's,
ouch,
pissed off,
roller derby,
the dark
Friday, July 3, 2009
the perfect yellow
Last night, I danced with two friends to a whole set of nothing but Michael Jackson tunes, at a Denver club where most of the patrons were half our age. They ate sushi; I ate edamame. We were overdressed and didn't give a shit, because we were all wearing something that made us happy. The young men could tell we were dancing in our own little worlds, and they mostly seemed to respect that somehow, even as they joined in. Smiles and just plain fun all around.
Tonight, my sons and I stayed up way past our bedtimes, watching videos of "Beat It" (followed, of course, by "Eat It", at which they laughed hysterically), "Billie Jean", "ABC", and others. A cultural history lesson via youtube. Tomorrow morning, when night has turned to day once again, and the world feels just a little bit safer, we will watch "Thriller". Zombies. Dancing. How could that NOT be good?! Revolutionary, even.
It's all pretty messed up, I know, what with the whole Michael Jackson corpse extravaganza thing and all. Believe me, I KNOW people die every single goddamn day from all sorts of causes: some naturally tragic, some insanely stupid, others completely preventable.
But I really can't get all worked up about either the fanaticism of it all, or the criticism of it all.
All that matters to me, at this moment, is that he be remembered for his music. And the memories he has gifted, at great expense to himself, to an entire generation. That was some kinda magic. Let us all be judged on what we did well. On whatever bit of magic we managed to bring into the world.
I have been contemplating my beige-walled kitchen for awhile. Someday soon, I will go out and search for the perfect yellow: the yellow of Michael Jackson's sweater vest.
Friday, June 26, 2009
bennettism #101
In an honestly frustrated, nearly angry voice: "But I just don't get it, why is it named after a magazine?!"
Bennett - while discussing whether or not we should go see Battle of the Smithsonian this afternoon.
Grandma's influence on my children will be everlasting. At our house, they read Horrible Harry and Harry Potter; at Grandma's house, they read The New Yorker, Tintin, National Geographic, and, yes, Smithsonian..
Bennett - while discussing whether or not we should go see Battle of the Smithsonian this afternoon.
Grandma's influence on my children will be everlasting. At our house, they read Horrible Harry and Harry Potter; at Grandma's house, they read The New Yorker, Tintin, National Geographic, and, yes, Smithsonian..
Labels:
current events,
film,
ha,
his mother's,
literature,
the home front,
tradition
Wednesday, June 24, 2009
The Color Pink
The bike is a new cruiser, fashioned to look like an old one. I drove past it every day on my way from school to radiation at the end of May. Finally, one day, I stopped. Test rode (this pic). Bought. No deliberation necessary.
It makes me happy to ride it. Happy to go at the speed of one speed. Happy to be a Rose Parade, with myself as the only entry. Happy to throw everything into the front basket (purchased later) and just go.
Today, I filled my basket and headed out to do some errands at about 4:00 pm. First stop, the post office, where I mailed my husband's 12-inch braid to Locks of Love. Two nights ago he let me cut it, and shave his head with the 1/2 inch attachment. Wow. He's had that hair for 20 years. Now he has hair that looks like mine.
While at the post office, I left the bike unlocked, but it was out of sight. A real lesson in trust. I only got out of line once to check on it. But I refuse to lock it up everywhere I stop, because it's impractical! Especially if I've got four or five places to get to before dinner.
Next stop: The Medicine Shoppe on Colorado Ave. I parked my bike out front (it has a kickstand!), and carried in my wallet and new scrip for Tamoxifen I had gotten from my oncologist earlier that day. While waiting, I decided to browse The Bookman. The pharmacist said the bike would be safer in front of his store, and he could watch it for me. When I came out of the bookstore and looked towards the pharmacy, my bike was nowhere to be seen! For a brief nano-second, I feared the worst. But when I looked in, there it was, parked in the middle of the pharmacy. The pharmacist had brought it in! I love my neighborhood.
I placed the bottle of pills in my basket, as well as the book I had picked up for Bennett for two bucks, and rode off towards the garden. We have a small but useful plot in the new Old Colorado City Community Garden, which is about six blocks from our house.
At the garden, I discovered new locks on the gates, and it just didn't feel quite right. They were definitely not Locks of Love. They felt like locks of exclusion. Even though we've got a deranged crazy lady roaming through, picking onions, and calling people names, that still didn't seem like reason enough to put locks on all three of the gates. Anyway, after calling Elise and getting the combo, I went in and picked some spinach and some greens, which I placed in a plastic container I had brought with me. Again, in the front basket of my unlocked bicycle. Needless to say, the salad I made for dinner, with some boiled eggs on top for protein, was second to none.
Baskets on bikes are not "cute"; they are PRACTICAL! It's so easy to just throw in what I need, and pedal out the driveway. No special shoes or dorky neon shirts with pockets in the back. I prefer skirts.
At some point in our recent history, "biking" became a sport, and not a way of life. I hate exercising, but going to the post office, the pharmacy, and the garden (I was also going to return a book to the library, but my neighbor I stopped to talk to was on her way there and said she would drop it off for me) on my new pink cruiser is just fun. I look for a reason to ride it every day.
I have a lock for it, but I lost the directions on how to set the combo. At some point, I will call the bike shop and have them help me figure it out. I will most likely use it if I park downtown and have to leave the bike for a few hours (yoga, for example). Until then, I will continue to roam the Westside lockless. With love. Like my husband.
Labels:
alive,
doctor stuff,
earth,
mr. suesun,
Westside,
you can't beat fun
Friday, June 12, 2009
overwhelmed by goodness
The past week or two has been jam-packed with amazing experiences. I marvel sometimes at how so many good things can happen in such a short time! Life has found me smiling more often than not these days....
A simple yet thrilling four-hour rafting trip down the Arkansas River returned my lost sense of strength and bravery. The next day, I wandered alone around Valley View Hot Springs until I found the pool where John and I sat nearly 14 years ago on the day before he proposed.
A week ago Friday, I had an amazing "love from strangers" day.... I held drawings of me and my mom in my hand, sketched by a woman who had seen our pictures on the blog. I received a bracelet with the word "HOPE" on it from another radiation patient. Later that afternoon, I met a woman in King Soopers who said, "I made your skirt."
Last Sunday night I hiked half-way up the Sand Dunes with two friends under the light of the full moon.
Yesterday, I took the time to teach my boys how to make scrambled eggs and french toast, instead of just doing it for them. Cooking is so much more than just food.
This evening, I danced barefoot on green grass in the pouring rain to the sound of Quetzal.... some cuban-latin-funk-fun.
Each one of these events would be worthy of its own blog post. Filled with details and photos and lessons learned. The problem is, I never seem to have enough time to reflect and write about them, because each and every day is filled with something special and magical. And I can't seem to choose which event is most worthy of a story. And I don't have time to write them all! I really shouldn't complain about this abundance, of course, but it's getting frustrating that I never seem to sit down long enough to actually record and reflect.
What to blame it on?
Facebook? That's an easy scapegoat.
The end-of-school-year/beginning-of-summer/middle-of-radiation madness? Perhaps.
Mostly, though, it's this strange feeling that if I can't share it all, then I shouldn't share any.
This needs to stop.....
....... Oh yeah, did I tell you about the purple penstemon and prolific peas? Or about how I swam 12 laps and did a back dive at the pool today? Or about the pleasantly slow speed of life on my new pink cruiser? Or about the fact that I have completed 23 out of 30 days of radiation?
A simple yet thrilling four-hour rafting trip down the Arkansas River returned my lost sense of strength and bravery. The next day, I wandered alone around Valley View Hot Springs until I found the pool where John and I sat nearly 14 years ago on the day before he proposed.
A week ago Friday, I had an amazing "love from strangers" day.... I held drawings of me and my mom in my hand, sketched by a woman who had seen our pictures on the blog. I received a bracelet with the word "HOPE" on it from another radiation patient. Later that afternoon, I met a woman in King Soopers who said, "I made your skirt."
Last Sunday night I hiked half-way up the Sand Dunes with two friends under the light of the full moon.
Yesterday, I took the time to teach my boys how to make scrambled eggs and french toast, instead of just doing it for them. Cooking is so much more than just food.
This evening, I danced barefoot on green grass in the pouring rain to the sound of Quetzal.... some cuban-latin-funk-fun.
Each one of these events would be worthy of its own blog post. Filled with details and photos and lessons learned. The problem is, I never seem to have enough time to reflect and write about them, because each and every day is filled with something special and magical. And I can't seem to choose which event is most worthy of a story. And I don't have time to write them all! I really shouldn't complain about this abundance, of course, but it's getting frustrating that I never seem to sit down long enough to actually record and reflect.
What to blame it on?
Facebook? That's an easy scapegoat.
The end-of-school-year/beginning-of-summer/middle-of-radiation madness? Perhaps.
Mostly, though, it's this strange feeling that if I can't share it all, then I shouldn't share any.
This needs to stop.....
....... Oh yeah, did I tell you about the purple penstemon and prolific peas? Or about how I swam 12 laps and did a back dive at the pool today? Or about the pleasantly slow speed of life on my new pink cruiser? Or about the fact that I have completed 23 out of 30 days of radiation?
Labels:
being human,
frustrated,
gratitude,
mr. suesun,
smiling
Wednesday, June 10, 2009
poem in facebook status update format
Sue Spengler
wants a job which would require her to drive a Chevy pickup on dirt roads, wear gloves, and look through some sort of lens
has amazing experiences, because she expects to
likes going to places that feel like foreign countries but that are only a half-day's drive away
is writing while driving on roads she's never been on before
slipped, fell down, brushed herself off, and remembered to slow down
thinks wars should be forgotten
picked things up and put them in her pockets
communed quietly with two winter coat-shedding deer
pulled over to take some photos; didn't pull over to take some others
is following a silvery sleek Airstream dream
worries that she missed the turnoff
has a thing for boxcars and junkyards
should not have doubted her instinct
has proved her intersecting point
wants a job which would require her to drive a Chevy pickup on dirt roads, wear gloves, and look through some sort of lens
has amazing experiences, because she expects to
likes going to places that feel like foreign countries but that are only a half-day's drive away
is writing while driving on roads she's never been on before
slipped, fell down, brushed herself off, and remembered to slow down
thinks wars should be forgotten
picked things up and put them in her pockets
communed quietly with two winter coat-shedding deer
pulled over to take some photos; didn't pull over to take some others
is following a silvery sleek Airstream dream
worries that she missed the turnoff
has a thing for boxcars and junkyards
should not have doubted her instinct
has proved her intersecting point
Sunday, May 10, 2009
mom and me
Fast forward to 1975. I'm in a quilted skirt with a scratchy liner and a matching too-tight neckerchief. My white blouse felt too big and bulky and made me feel ugly. My teeth were crooked. It was near Christmas, which was never an easy time for our three-person family. Mostly, I remember that I didn't feel like smiling or holding my mother's hand. But I was aware that doing so would make her happy, so I tried. Sort of.
In 2000, my mother was diagnosed with stage IV metastatic breast cancer. She would live another five and a half years before finally succumbing on August 2, 2006. This photo is from a New York Times article about Oregon's Death with Dignity Law. I remember how excited she was when she told me that the NYT was coming out to Oregon to do a story about HER. She just couldn't believe it.
Fast forward to 2009. Yes, today I donned my mother's orange sweater and Mayan earrings, and had my children take a picture of me "just like Granny". It's never too late to have matching outfits.
Friday, May 1, 2009
fline swu

One other note on this whole exaggerated flu thing: One of my Hispanic student's young sons was out playing yesterday. A little Black boy insulted him, and told him to go back to Mexico. I hate what fear does to people.
Wednesday, April 29, 2009
the end
So chemo is over. Twelve infusions and 28 weeks later, I can safely say I have arrived. Still intact. A bit more fragile. A bit stronger.
I had my first experience of running into someone I hadn't seen for awhile, and giving the abridged version when she asked me how chemo went. Yeah, I was hospitalized with a neutropenic fever over Christmas break, had severe neuropathy, shingles, and lymph cording... it was hell, but I made it.
It was strange, looking back on it like that. The day was sunny, I was strolling rather happily around the neighborhood taking in the tulips, and the fuzz on my head was as downy as a newborn chick. All of the sudden, it seemed as if I had awoken from a really bad dream, the details a bit hazy.
And now to the most Frequently Asked Question That I Am Getting Tired Of Answering. It comes in various forms.
Is it all gone now?
Did they get it all?
So, there's no more cancer?
I know what they mean. They want to know if I'm going to live. And for how long. Cancer is all about "how to talk around death". I appreciate most the people who have understood that to be diagnosed with cancer is to look mortality in the face and have a serious come-to-Jesus talk.
Anyway, here's the answer, as well as I can explain it:
First, the data, from a handy computer program that takes into account your age, general health, size and grade of tumor, and number of lymph nodes affected: With no treatment except surgery, I would have had a 62% chance of being alive with no recurrence in ten years. With chemo, it brought it up to 82%. If I choose to take Tamoxifen, it will bring that up to an 88% chance of seeing the year 2019. Chemotherapy doesn't "get it all". It gets about 99.9% of any cancer cells that might have leaked out of the tumor into my lymph system. It only takes one rogue cell, traveling around and deciding to lodge itself in my bones or lungs or liver X number of years in the future, for the cancer to return. There are no guarantees. It will never be "all gone".
I am an idealist at heart, yes. I see the bright side of just about every godddamn problem there is. I believe the best about everyone. Pollyanna should have been my middle name. If I had to, I could find something positive to say about cat poop!
But that doesn't take away the fact that there's a 12% chance that I won't see my youngest son off to college. You see, this is where cancer takes your mind in the darkness. It's not to be dwelt upon, but it is also not to be ignored.
When one is in the middle of treatment, there is focus, purpose, a singular task. Now that I have been released from chemo and have more decisions to make (more on that later), I find myself in a strange tormented limbo once again.
I had my first experience of running into someone I hadn't seen for awhile, and giving the abridged version when she asked me how chemo went. Yeah, I was hospitalized with a neutropenic fever over Christmas break, had severe neuropathy, shingles, and lymph cording... it was hell, but I made it.
It was strange, looking back on it like that. The day was sunny, I was strolling rather happily around the neighborhood taking in the tulips, and the fuzz on my head was as downy as a newborn chick. All of the sudden, it seemed as if I had awoken from a really bad dream, the details a bit hazy.
And now to the most Frequently Asked Question That I Am Getting Tired Of Answering. It comes in various forms.
Is it all gone now?
Did they get it all?
So, there's no more cancer?
I know what they mean. They want to know if I'm going to live. And for how long. Cancer is all about "how to talk around death". I appreciate most the people who have understood that to be diagnosed with cancer is to look mortality in the face and have a serious come-to-Jesus talk.
Anyway, here's the answer, as well as I can explain it:
First, the data, from a handy computer program that takes into account your age, general health, size and grade of tumor, and number of lymph nodes affected: With no treatment except surgery, I would have had a 62% chance of being alive with no recurrence in ten years. With chemo, it brought it up to 82%. If I choose to take Tamoxifen, it will bring that up to an 88% chance of seeing the year 2019. Chemotherapy doesn't "get it all". It gets about 99.9% of any cancer cells that might have leaked out of the tumor into my lymph system. It only takes one rogue cell, traveling around and deciding to lodge itself in my bones or lungs or liver X number of years in the future, for the cancer to return. There are no guarantees. It will never be "all gone".
I am an idealist at heart, yes. I see the bright side of just about every godddamn problem there is. I believe the best about everyone. Pollyanna should have been my middle name. If I had to, I could find something positive to say about cat poop!
But that doesn't take away the fact that there's a 12% chance that I won't see my youngest son off to college. You see, this is where cancer takes your mind in the darkness. It's not to be dwelt upon, but it is also not to be ignored.
When one is in the middle of treatment, there is focus, purpose, a singular task. Now that I have been released from chemo and have more decisions to make (more on that later), I find myself in a strange tormented limbo once again.
Thursday, April 23, 2009
barb spencer
difficult problems
in full bloom
through seasons of sweat and chill
a breakthrough may only be a small step away
all in good time
you can count
on
the power
of
God
to
ease the
experience
day be day,
finally,
you win.
1997-1998.....In my second year of teaching sixth grade at Carmel Middle School, I was working with an amazing team of teachers. There were three of us. We all taught a Reading/Language Arts Block, and then the kids rotated through for Social Studies (me), Math (Lisa), and Science (Barb). In February of that year, Barb informed us that her breast cancer had returned, and she would be undergoing intense treatment for the rest of the school year. She would be taking the rest of the year off. For two young teachers, the news was hard; for our kids, it was devastating. Somehow, we made it through to the end of the school year, having lost a teacher the kids loved, and having to make due with a substitute they could barely tolerate.
Over Spring Break that year, I made Barb a journal. For the cover, I cut out various pictures and phrases from magazines, and arranged them together with some homemade paper I had left over from the days when I made homemade paper. She told me that it would be her gratitude journal.
In September of this year, after my breast cancer diagnosis, Barb returned that journal cover to me. She had somehow cut if off of hers, and glued it onto the cover of another. I take it with me to every doctor appointment, jotting down notes, unfamiliar words, statistics, observations of waiting rooms, phone numbers, and occasionally, things for which I am grateful.
Today, I am grateful for a found poem.
Labels:
doctor stuff,
friends,
gratitude,
poem-a-day,
teacher stuff
Wednesday, April 22, 2009
moving day
it was the
shrink-wrapped tubs
of tiny treasures
that finally did me in
that, and the multi-colored
metallic dragon
unnecessary as a hundred
and eleven friends
but still
you wouldn't want to unfriend
a dragon
sometimes there's no need for
small boxes to
pack, check, x, stack
volume is fascinating
with its emptiness and
howtofillitness
and imsorryifilostitness
patience I mean
with those too young to understand
friendship is never easy
and full of ums
shrink-wrapped tubs
of tiny treasures
that finally did me in
that, and the multi-colored
metallic dragon
unnecessary as a hundred
and eleven friends
but still
you wouldn't want to unfriend
a dragon
sometimes there's no need for
small boxes to
pack, check, x, stack
volume is fascinating
with its emptiness and
howtofillitness
and imsorryifilostitness
patience I mean
with those too young to understand
friendship is never easy
and full of ums
Tuesday, April 21, 2009
WWYS - What Would Yoda Say?
Cancer makes impossible-to-ignore demands-rearrange your priorities
be content to be who you are
let go of the illusion of control
Cancer shines a light on what really matters
I try not to think trite thoughts
(Do or do not; there is no try)
but I can't get
Pachelbel's Canon in D or
Klimt's Kiss or
That which doesn't kill us....
out of my head
I could even
throw
a party now
with the
theme of "pink"
without
throwing up
Neitzsche was wrong-
I don't feel any stronger
At least not yet
Even the cliched could sound sagacious
if conveyed from the mouth of Yoda:
"Your priorities, rearrange you must."
"Be who you are, if content you wish to be."
"Illusion of control, let go of you must."
"On what really matters, a light cancer shines."
Beings are wise, not because they can
comprehend the complicated, but
because they can
simplify it
for the rest of us
"Makes us stronger, hmm?, that which kills us not."
Monday, April 20, 2009
number 12
When John and I arrived this morning at 9:15 AM, I was weepy without end. Brownie, 92-year-old Brownie, who volunteers in oncology, who brings me warm blankets and hot lunch and cold applesauce, and, when asked the secret to a long life doesn't hesitate when she answers: "I guess I just don't worry very much"....... anyway, Brownie was the first to say good morning, and unfortunately she got the brunt of my didn't-get-enough-sleep-last-night tears.
Gunda took my weight and blood pressure, and Susan drew my blood. That hour and a half wait for the lab reports was one of the longest of my life. Luckily, all was well, and my twelfth chemo infusion was under way. After some IV Pepcid, steroid, and Benadryl, the last bag of Taxol was hung. At that point, I knew that freedom from having my port poked was a mere three hours away. I slept through most of it, thanks to the Benadryl.
I became particularly close to one nurse, Anne. She was the witness to several of my breakdowns, as well as the one who broke the news to me that Matt, a 20-something young man I sat next to on occasion, had died. When she hugged me on the way out today, I did shed a few tears, and told her that I couldn't have done it without her.
That evening, Grant, Bennett, John, and I ate sopapillas from La Casita and drank Ibarra Mexican Hot Chocolate around the fire pit, each making a little celebratory, ceremonial toast. Then Grant and Bennett light sabered around the backyard. How I love watching them become Jedi in their minds and bodies and souls. It was after 9 PM before we finally came in; if you know me, letting my kids stay up that late on a school night is virtually unheard of! But I've learned a lot, and one of the things I've learned is that special events allow us all to break the rules. I've also learned how easy it is to take a sick day (thanks Klayton and Suzanne!), and that I should do it more often.
So I've come to end of this chapter, and am going to close the book for awhile. There will be more..... radiation, hormone therapy, lab tests for ever and ever, but I'm letting all that go for now. At least for the couple three weeks until radiation begins.
For now, here's a toast to 82%! According the stats, I have an 82% chance of living 10 years with no relapse. I'm going to make sure and take Brownie's advice, and not worry about the other 18%!
At about 9:15 PM, 12 hours after arriving in oncology this morning, we popped the final balloon:
Labels:
alive,
body worlds,
doctor stuff,
numbers,
the home front
Sunday, April 19, 2009
Subscribe to:
Posts (Atom)
