Vespers for the Voiceless

If I were to commission a stained-glass window for my Church,
It would be a single Nightingale upon a beech branch in springtime.
Her tongueless trills would be the Hymns we would sing at sundown—
No noticeable pattern, only an algorithm inherited from the Ancients.

Our Priestess wears her sandy plumage as a sacred vestment,
Her legitimate lineage endows her with the power to Pardon.
Her mutilated blessings would help us to forgive our Tereusian Trespassers,
And dare her Congregation to turn laments into Praise.

Exquisite Meadowgrass Corpse

Written by nine people between the ages of 11 and 55, in blue and black ink on one side of a ripped out page of a composition book, while sitting in lawn chairs under the yellow and white striped tent, being entertained by the Chimney Choir, which wasn't a choir at all.

Transcribed here by me in nine different colors.  Remember, in an Exquisite Corpse, the writer can only see, and therefore respond to, the line right before his/hers, as the paper is repeatedly folded over as it passes from person to person.

NB:  All spelling, line breaks, punctuation, and capitalization have been retained from the original.

"Am I really going to desicrate
this grave forever? Of course
I am."

I smiled as I lifted the shovel and
lowered it sharply on the grave

The body of the innocent fell
sharply into the freshly dug grave

Innocence was murdered.  Without a care.

In one shake of a storm

A lonely crow burst through the clouds

Exploding into feathers and
dust, black as the darkest night

that flew into the air

Like a bird dropping on a
windshield.

letting this one go.....

She was sleight of frame but strong in form. Her sparse long hair, the same drab color as mine when without highlights, hung down her back in a thoughtless ponytail. She asked me if I was "about ready to check out?" I supplied the openness she was looking for when I replied, "Why, yes, I am. Why do you ask?"

She produced a Kroeger gift card with 20.43 scribbled in black ink on the front of it. "I was wondering if you could use this card to pay for your groceries, so I could get cash to put gas in my car." Here I was, with a cart half full of cereal boxes and baby shower non-necessities.... how could I say no to a woman whose only need at the moment was gas in her car?

"Um... sure... how does it work?"

"Here, I'll take you through the line and show you."

"So wouldn't it just be easier if I traded you the card for the cash?" I uttered foolishly as I opened my wallet and searched out the lone twenty buried within a dozen smaller bills.

As I handed it to her and received the gift card in return, I offered her an extra dollar to cover the remaining 43 cents. She declined, and mumbled something about maybe getting a bottle of water with it.

She then led me like a lamb to the self-checkout slaughter, and proceeded to pretend to be interested in bagging my excesses. She must have been viewing me with that particular combination of envy and disgust that has forged and fed most every revolution in history.

I continued to occupy myself with a temperamental self-checkout station ("Please scan your Soopercard now." "Please remove the last item from the bag." "Please place the item on the scanner.") which I had made even more cumbersome by having the audacity to bring two of my own shopping bags, which required an intercessory prayer to the lone clerk (who, I'm sure, deals with the idiocies of inept humans all day, and yet still manages to smile patiently) who did something mysterious to the scales and added two 5-cent credits to the little screen in front of me.

In the middle of all this chaos, my middle-aged con-woman excused herself to the restroom, saying she'd "be right back", but that she "really had to go", and that she would help me check out when she returned.

It was then, of course, that the doubts tiptoed into my dreadfully unmindful mind, as I struggled to look up cucumber codes, keep an eye on my purse, play bagging Tetris with my scanned items, and try to stop thinking about all the time I was wasting when people would be arriving at my house for Elise's baby blessing in less than an hour!

Lo and behold, she showed up again magically at my side to help organize the last of my goods into the two bags I had brought, and begin the check-out process.

Let's just skip the details and asides for now, shall we, as we arrive at the inevitable: the gift card had a balance of zero. She didn't appear to be too mystified, and actually said, "Well, I just kinda found it and figgered it had the money on it that it said." Then she asked the clerk if there was a way to check the balance. He asked for the card, and said he could make a phone call. While he was dialing, and before giving me time to process this new revelation, she asked our clerk where the water was, as she was quite thirsty, and disappeared, 20 dollars richer, down a brightly lit aisle that could have just as easily been a dark alley.

I would wait for another four or five minutes, as the kind clerk made his phone call that confirmed the zero balance. After he returned the card to me, I related my story, embarrassed though I was, to him. He reviewed aloud with me her appearance, so that he would be able to recognize her in the future.

In my mind, of course, I believe she had it all planned out, every single detail of the operation, beginning with the spotting of the ideal victim and ending with $20 in her pocket. And so I have to applaud, really, her resourcefulness. She made in ten minutes what most panhandlers make in several days. Was it dishonest as hell? Yes. Did she intentionally want to hurt me or make me angry? I don't think so. I told the clerk before leaving, "Well, I think I'll just chalk that one up to my naivete, and let it go."

Once again, what Odysseus pronounces in The Odyssey proves to be true: "All-seeing Zeus takes half the good out of a man on the day when he becomes a slave."

thursday

it was only a
lymph node, but it was enough
to ruin my day

growing up is hard to do

I left my 10-year old son home alone (his brother was spending the night with a friend) for about half an hour today while my friend Elise drove me to my car. For the second Friday in a row, I had managed to lock my keys in the car. For the second Friday in a row, a friend bailed me out. Never mind the hows and the whys.

Before leaving the house, I hugged him quickly, told him to practice piano while I was gone, and of course, as always, no computer. He's a good kid. I trust him. I know it is impossible for him to lie to me. He wears guilt on his face like a caricature.

But today, I heard it in his voice. After successfully retrieving my car, and feeling a newfound sense of optimism, I called to check in with Grant.

- Hey, kiddo, I just called to tell you I'm on my way home.
- Ok. Did you get the car?
- Yep. I think I'll stop by Boriello's on the way home and get us a pizza to have during the movie.
- I'd rather have Blackjack.
- Well, I'd like Boriellos's.
- Oh, well.... I guess that's ok with me. Hey, will you call me when you get there?
- Sure, Bug. Talk to you in a little bit.
- Ok, Mom. Bye!
- Bye.

Suddenly, I just knew. The way a witch knows it's Samhain. The way my grandmother knew my father. The way you know without my insulting insertion of italicized adjectives or adverbs.

I've done this before: known things. Mostly with rather exhausting consequences. But this time, it's my own child, and it feels vastly different. I am in control. I know exactly what to do.

Dial up Blackjack. Drive straight home. Don't call.

And then there's that moment when you realize that you're no longer Sally in The Cat in the Hat. You're the mother. And you want the ending to be very, very different.

He intercepted me in the only-area-in-our-westside-bungalow-that-could-vaguely-be-called-a hallway with a hug. The kind of hug that says, "Hi Mom! I'm so glad you're home," while muttering, "Oh, please, please, stop right here... please don't go any further..."

I peered over his head, into the dusk-tinted living room, to the top of the bookcase where my MacBook should be. It wasn't. In the sternest, yet calmest voice I think I have ever managed, I asked, "So, where's my computer?" He hung his head, and stepped aside. I walked straight through the living room towards the faint bluish glow of radiation, reflected on the beige carpet, the orange walls and the back of the recliner. I picked up my computer, returned it to the bookshelf, and said, "Get your shoes on and get in the car."
"Where are we going?"
"Don't ask. Just do it."

I've never seen him move so quickly to comply with an order. On the short drive to pick up our pizza, I asked him why. His pure and heartfelt confession came spilling over to me in the dark from the back seat.

Through sobs and sniffles, he related to me how his desire to play Battle for Wesnoth had led him to "disobey" me. After his story, I really wanted to say something about him not taking responsibility for his own actions! But I couldn't.

I understood.

We talked about addiction, about feeling out of control, about how awful it feels, about solutions. It's so much less threatening for a boy to talk to his mama from the back seat of a car, I think. I let him know the consequences would come later. I actually think I heard him say something like, "Yes, Mom."

He understood.

I made him give the man behind the counter our name. I made him carry the pizza. I didn't open the car door for him when he asked for my help. Once we were home and safely inside the kitchen, I looked him square in the face and said, "Here's the deal. No staying home alone for awhile; everywhere I go, you are going with me. No computer all weekend. On Monday, you can use the computer, but no Battle for Wesnoth until a date that you decide on, and I agree to. Got that?"
"Yeah."
"Good, now repeat it to me."

Which he did, accurately, to the very last word, while successfully interchanging the i's and you's. Without prompting, he went straight to his own calendar (we hung it up just a week ago), came back, and said, "January 15th. Is that ok?" I said I thought it was perfect.

- One last question, Bug.
- What?
- Do you want to tell Dad?
- Not right now.
- Ok. He'll be home in a few minutes. Let's make it like a party in here!

After that, I didn't need to tell him a thing. He put the pizza in the oven, and set the oven to 250. He put his shoes and coat away. He cleaned off the coffee table (no small feat) and laid out 3 plates. With napkins! John arrived home. Grant gave him a big hug, and asked him what he wanted to drink. After he had poured the juice and set the pizza on the coffee table, he asked us each what kind we wanted, and served it up.

The Two Towers began, the three of us snuggled up on the couch together.

It was, perhaps, an over-eager and childish attempt at atonement. Yet it was also natural and beautiful and mature. We crossed into new territory today. I can't believe I get the privilege of watching my son grow into a man.

happy frickin' anniversary

June 23, 2009
Last day of a 30-day course of radiation. No Problem! Piece o' cake compared to chemo! Feel great! Garden sprouts! Hair and a Tan! New pink bicycle! Summer! Dancing!

REWIND (cue scratchy backwards record sound)

July 24, 2008
Husband informs me (as soon as I am all happy-dreamy-post-orgasmic) that he felt an abnormal lump in my breast while we were having sex. He shows concern. I choose to go into instant denial, and don't even dare look at or touch myself until the next day.

July 25, 2008
Leave for a two-night camping trip near Princeton Hot Springs for the weekend. Spend the time soaking and hiking and trying not to touch it or to worry. It's the weekend, and figure can't get in to see the doc 'til Monday anyway. Still in denial.

July 27, 2008 - late Sunday night in my own bed after two nights of camping
Cry. Because I know.

July 28th - early Monday morn
Call to make an appointment with Dr. Zirkle, my young and handsome PCP. He's not there, so I see a woman NP who fondles my right breast with a questioning look on her face. Don't remember her name, but she makes an appointment straight away for a diagnostic ultrasound the next day. Call Sara on the way home. Cry. Pick up boys at the Burkles for what they thought was a playdate.

July 29, 2008
Diagnostic ultrasound. Suzanne shows up. I thought I wouldn't need anyone. It's just a little test, after all. Glad she's there, after all.

"Right breast diagnostic ultrasound dated July 29, 2008, shows a dense breast parenchymal pattern with an abnormality corresponding to a 2.1 cm cm in greatest dimension, hypoechoic lesion with irregular margins." Oh crap, a whole new vocabulary to learn; the exact one I never ever wanted to learn. They want to schedule a needle biopsy next week... the only way to know for sure if it is cancerous or not.

Hysterically, tearfully, tell whoever will listen that I DON'T HAVE TIME! BY THE TIME MY MOTHER WAS DIAGNOSED, SHE WAS AT STAGE 4! DON'T YOU GET IT PEOPLE?! I DON'T. HAVE. TIME! Get biopsy scheduled for 31st.

Dammit, I think to myself, here we go...

July 30, 2008
Wait.

I decide to tell no one else until I get the biopsy results...no sense worrying others about something that may turn out to be nothing. There's a pretty good chance, I keep telling myself, that it might be, you know, like a cyst or something.

Get mad at husband for telling his mother, because I don't want her to worry about me. Then quickly realize that he needs someone to tell as well.

July 31, 2008
I return for an "uncomplicated" ultrasound-guided needle biopsy. John comes with me this time. I learn another new vocabulary word: Axilla. Think it would make a great name for a Sci-Fi badass female character or a Derby Dame. Learn it's really just a complicated word for "armpit". Still think it would make a great name.

July 31-August 5th
Wait.

Try to do the laundry and talk with friends and read to the boys before bed. Every day is an eternity. I remember a band called 'Til Tuesday. I just have to make it 'til Tuesday. Because that's the day I'll get the results.

Spend my waiting days with a 2 cm secret, a stoic smile, a welcoming kitchen table and an even-keeled telephone voice. I am not one for holding in anything, so this is a particularly difficult time for me. For once, I ask more questions of others, instead of talking about myself. Lying in bed at night, I barely hold on to my sanity. Give me chemotherapy any day over this hell of not-knowing!

Saturday, August 2nd, 2008
The second anniversary of my mother's death from breast cancer. I'm invited to what sounds like a lovely garden party, but I just can't make myself go. I can't believe that the world keeps spinning, that people keep going to work and making love and having parties. It just doesn't seem right.

Morning of August 5th, 2008. Tuesday.
I know the moment the nurse opens that door into the waiting room and calls my name. I can see it in her face, hear it in her voice. John and I stumble through the door, take a thousand steps down the hall, and are ushered into a tiny conference room on the right. The wonderful, motherly, optimistic ("this doesn't really look like cancer") radiologist who performed the biopsy all those years (6 days!?) ago isn't in the office today, so a man who knows absolutely nothing about me presents me with a huge white binder and these words: "You have invasive ductal carcinoma." Just like that. They don't even say cancer. Bastards.

Afternoon of August 5th, 2008
In order to occupy my mind, I try and accomplish some menial household tasks. I empty the dishwasher, slowly, dish by dish, taking note of each one, how it feels in the hand, how it shines in the light. After that, I simply end up pacing the house or lying on my bed. Doing "normal" things takes on a surreal edge. A hyper awareness permeates my every move, every step, every breath, every word. I am restless, and in shock, and don't know what to do with myself.

Evening of August 5th, 2008
I call Mike Carsten to see if he is working. He is. I ask him to make me a Cosmo and tell him I will be there soon. John stays home with the boys. I predict this will be the first time I ever sit at a bar alone and tell the bartender my problems. When I walk in to 15C, I am somewhat relieved to see Bettina and Aaron sitting at the bar. I sit down in front of my drink, and ask Bettina for a cigarette. After a slow sip and a deep inhale, I look at Mike across the bar and utter, matter-of-factly, "I have breast cancer." That singular moment will be etched in my brain forever.

Sara shows up. I drink another pink Cosmo. Bettina tells me I have a "pass", so I smoke one more, or maybe several more, of her pink Camels.

August 6, 2008
My first day of school. I am hungover and miserable and sitting in a meeting at 8 am. At least my boss knows, as Sara had the forethought to call her from the bar last night and tell her.

I want to drink and throw beer bottles out into the street and hear them crash.

July 31, 2009
So you see, here we are now, exactly a year later. From the end of radiation until about a week ago, I felt like a million bucks. Reborn. Then last week, emotions (but not necessarily memories) began surfacing, unbidden, and at inopportune and unexpected times.

Perhaps I felt them more because we were on vacation, relaxed, and I was more in tune with myself and not engaged in the daily duties of home.

In the "tummy of the Earth" (as Grant called it-otherwise known as Wind Cave), my body went into shock, and I cried for the stillness and the darkness of it all, yet happy in the knowledge that our complex planet has no concern for our trivial human problems.

My anger resurfaced for no apparent reason one morning at the Coach House (John's childhood vacation home in Wisconsin). In the process of making scrambled eggs, I went out onto the porch and threw an egg at a tree with every bit of strength I had. To hear it splat gave me great satisfaction!

While riding on country roads, I felt again that hyper awareness, that surreal edge. I felt as if I could ride forever among the cornfields and silos and old cemeteries.

Now I'm home. The summer is coming to a close, and another school year is about to begin. My mind and body are sorting out the events of the past year.

Welcome to Year 2.

the end

So chemo is over. Twelve infusions and 28 weeks later, I can safely say I have arrived. Still intact. A bit more fragile. A bit stronger.

I had my first experience of running into someone I hadn't seen for awhile, and giving the abridged version when she asked me how chemo went. Yeah, I was hospitalized with a neutropenic fever over Christmas break, had severe neuropathy, shingles, and lymph cording... it was hell, but I made it.

It was strange, looking back on it like that. The day was sunny, I was strolling rather happily around the neighborhood taking in the tulips, and the fuzz on my head was as downy as a newborn chick. All of the sudden, it seemed as if I had awoken from a really bad dream, the details a bit hazy.

And now to the most Frequently Asked Question That I Am Getting Tired Of Answering. It comes in various forms.

Is it all gone now?
Did they get it all?
So, there's no more cancer?

I know what they mean. They want to know if I'm going to live. And for how long. Cancer is all about "how to talk around death". I appreciate most the people who have understood that to be diagnosed with cancer is to look mortality in the face and have a serious come-to-Jesus talk.

Anyway, here's the answer, as well as I can explain it:
First, the data, from a handy computer program that takes into account your age, general health, size and grade of tumor, and number of lymph nodes affected: With no treatment except surgery, I would have had a 62% chance of being alive with no recurrence in ten years. With chemo, it brought it up to 82%. If I choose to take Tamoxifen, it will bring that up to an 88% chance of seeing the year 2019. Chemotherapy doesn't "get it all". It gets about 99.9% of any cancer cells that might have leaked out of the tumor into my lymph system. It only takes one rogue cell, traveling around and deciding to lodge itself in my bones or lungs or liver X number of years in the future, for the cancer to return. There are no guarantees. It will never be "all gone".

I am an idealist at heart, yes. I see the bright side of just about every godddamn problem there is. I believe the best about everyone. Pollyanna should have been my middle name. If I had to, I could find something positive to say about cat poop!

But that doesn't take away the fact that there's a 12% chance that I won't see my youngest son off to college. You see, this is where cancer takes your mind in the darkness. It's not to be dwelt upon, but it is also not to be ignored.

When one is in the middle of treatment, there is focus, purpose, a singular task. Now that I have been released from chemo and have more decisions to make (more on that later), I find myself in a strange tormented limbo once again.

too much

The day started out rough enough.... an argument with my oldest over his science project (whoever invented "Science Fair" anyway?!) Truce drawn, we managed to get out the door with all four potted radishes, grown under different light conditions, only to find out there was a two-hour delay. Part of the reason for the argument was that my son has had two miserable nights of sleep in a row. Seems that they were telling scary stories in class day before yesterday, in preparation for a "Fourth Grade Camp-in" while the fifth graders are away at Outdoor School. Being the sweet sensitive soul that he is, with a thin fantasy/reality line, he has had a hard time getting to sleep the past two nights. Last night, he woke up screaming at 3 AM, and I had to camp out in his room for about two hours until he finally managed to relax and drift off to dreamland. The worst part is that he felt sorry for ME, and his brother, for keeping us up.

Later that day, while my students were working in the computer lab on their blogs, I took some time to read some blogs of friends I hadn't visited for awhile. Turns out another one of my blog friends was recently diagnosed with DCIS, and had surgery. That's number three! Three blog friends who have had cancer after me! I feel fucking contagious or something! If you don't want breast cancer, don't read my blog!

After class, one of my students, one of my favorite students, stayed after class to tell me that her 14-year-old daughter, who she had been struggling with, is pregnant. (Don't think all teachers do is teach!) The girl has no choice but to have the baby. My student is a single mother of FOUR teenagers, who has always tried her best to keep them involved in school, give them a good life, etc.., and now she feels as if she has failed. Having no tissues in my room, I had to watch her wipe her eyes repeatedly with the sleeve of her red sweater. The cuff of my sleeve holds evidence of my tears as well.

To top off the morning, on the drive home, I kept thinking about Timber, who I didn't know but many of my friends did. Suicide. Having to read others' outpourings of love and regret and loss is incredibly difficult.

I just wish there were something to take away the pain. Not my own.
Everybody else's.

earth hour

wuthering heights

The horizons ring me like faggots,
Tilted and disparate, and always unstable.
Touched by a match, they might warm me,
And their fine lines singe
The air to orange
Before the distances they pin evaporate,
Weighting the pale sky with a soldier color.
But they only dissolve and dissolve
Like a series of promises, as I step forward.

There is no life higher than the grasstops
Or the hearts of sheep, and the wind
Pours by like destiny, bending
Everything in one direction.
I can feel it trying
To funnel my heat away.
If I pay the roots of the heather
Too close attention, they will invite me
To whiten my bones among them.

The sheep know where they are,
Browsing in their dirty wool-clouds,
Gray as the weather.
The black slots of their pupils take me in.
It is like being mailed into space,
A thin, silly message.
They stand about in grandmotherly disguise,
All wig curls and yellow teeth
And hard, marbly baas.

I come to wheel ruts, and water
Limpid as the solitudes
That flee through my fingers.
Hollow doorsteps go from grass to grass;
Lintel and sill have unhinged themselves.
Of people and the air only
Remembers a few odd syllables.
It rehearses them moaningly:
Black stone, black stone.

The sky leans on me, me, the one upright
Among all horizontals.
The grass is beating its head distractedly.
It is too delicate
For a life in such company;
Darkness terrifies it.
Now, in valleys narrow
And black as purses, the house lights
Gleam like small change.

Sylvia Plath

the tale of despereaux

Arghhh!!!! I feel such anger at Kate diCamillo for letting Hollywood destroy her perfect little gem of a novel! Sadness for the children who may now never bother to read the modern-day fairy tale! Disappointment that something so seemingly dark but unbelievably charming was turned into something so mediocre and watered-down!

I read The Tale of Despereaux aloud to my boys about a year ago, in the February darkness, when they were seven and eight. It was one of the most profound experiences we have ever had reading together. I knew it would be a challenge to turn the exquisite language and themes of the novel into a film, but I thought the same about Charlotte's Web as well, and was pleasantly surprised by the screen version. I suppose my hopes were too high.

Do yourself and your children a favor, please: for the price of only one movie ticket, you can buy the book. Read it aloud together. Caress the uneven pages along the edges, marvel at the illustrations, talk about what it means to be yourself, about what happens to people when they are mistreated, about what it means to find light in "Once upon a time....."

The themes are heavy and dark, and for this reason alone, I know parents who have dismissed it. They are idiots. They forget that for true redemption, there must be real sadness, real suffering. Children need not be sheltered from these kinds of stories. They are powerful beyond measure.

For those that don't like Despereaux's themes of abuse, servitude and death (the themes that were completely left out of the movie!), I would refer you to this lengthy, but appropriate comment from C.S. Lewis:

"A serious attack on the fairy tale as children's literature comes from those who do not wish children to be frightened....Those who say that children must not be frightened may mean two things. They may mean (1) that we must not do anything likely to give the child those haunting, disabling, pathological fears against which ordinary courage is helpless: in fact, phobias....Or they may mean (2) that we must try to keep out of his mind the knowledge that he is born into a world of death, violence, wounds, adventure, heroism and cowardice, good and evil. If they mean the first I agree with them: but not if they mean the second. The second would indeed be to give children a false impression and feed them on escapism in the bad sense. There is something ludicrous in the idea of so educating a generation which is born to.…the atomic bomb. Since it is so likely that they will meet cruel enemies, let them at least have heard of brave knights and heroic courage...

By confining your child to blameless stories of child life in which nothing at all alarming ever happens, you would fail to banish the terrors, and would succeed in banishing all that can ennoble them or make them endurable.For in the fairy tales, side by side with the terrible figures, we find the immemorial comforters and protectors, the radiant ones; and the terrible figures are not merely terrible, but sublime. It would be nice if no little boy in bed, hearing or thinking he hears, a sound, were ever at all frightened. But if he is going to be frightened, I think it better that he should think of giants and dragons than merely of burglars. And I think St George, or any bright champion in armour, is a better comfort than the idea of police."

"the blood is the life!"

Blood.  The Elixir of Life.  Always moving, it carries oxygen through our veins, flows out in menses, brings color to our cheeks, makes sex enjoyable, keeps us warm, and is always red, never blue.  I will never, ever again take it for granted.

I understand now, the Vampire's need.  For I have sucked another's blood and have found it to be to my liking.

The Christians drink, symbolically anyway, the blood of Christ.  Catholics take it a little further. I have often wondered about this paradoxically shared love of blood among seeming opponents. Perhaps Vampires and Christians are really not that different after all. 

I have just spent three nights in a hospital bed.  I found myself there after I finally realized on the day after Christmas that the way I had been feeling for the past couple of days was definitely not normal, even for a chemotherapy patient.  Unable to stand in the shower for any length of time, with chills that wouldn't end, and an inability to accomplish even simple tasks, I finally checked my temp. (102.9 at its highest) and called the doctor.  

Which landed me in the hospital for three nights, due to having next to zero white blood cells, and a dangerously low red blood count.  There I lay, hooked up to IV antibiotics, watching Gremlins and Westside Story and other great classics on the AMC, playing Quiddler, and finishing a fantastic novel.

On the third day, they gave me two blood transfusions.  I immediately felt like a new person, with a new life. Only slightly more blood-thirsty.  

So if you see me on some dark night, staring at you rather hungrily, please take precautions.  

Consider yourself warned.

(Title quote from Bram Stoker's Dracula)

nice shoes

Goddammit. God fucking dammit.
RIP Bill.

the truth about chemo

It's Friday night, and I am clawing my way up out of Hades. Having descended into hell, I am now ascending into, if not heaven, at least something remarkably better than hell. We hear much about "The Resurrection", as if it were a static event, as if one went from being dead to being alive in an instantaneous flash of golden light. Not so.

Chemotherapy is like dying and being reborn every two weeks. Monday is my Chemo Day. Wednesday is my Good Friday. Friday is my Easter. The requisite three days spent entombed. You slowly fall into a catatonic state of being able to do absolutely nothing. It's like the first trimester of pregnancy, with a good dose of flu, hangover, and depression heaped on top for good measure. "Don't touch me." "Don't talk so loud." "Slow down." When you move at the speed of the elder and the toddler, you realize that the world moves much too quickly. The grocery store is a maze of people moving too fast, talking too loud, buying too much stuff....... so you just don't go. The sight of children running on the front lawn of their elementary school is a scene from another lifetime, and you can't quite comprehend it. Everything is seen through a haze. The body becomes so heavy that to lift it out of the chair is a monumental task. You see the dirty dishes, but are absolutely powerless to lift one pinky to even open the dishwasher.

It's only for three days. But still.

And now, on Saturday morning, the sun is shining and I feel like going for a walk and I'll probably (gasp!) go contradancing tonight. I can read. I want to make soup and plan my son's birthday party and do the laundry and pay the bills(overdue for the first time in years). The living room is filled with golden orange light. I am resurrected. The memory of the past three days slowly slips away. I am nearly giddy with gratitude for the ability to see clearly.

I think I may possibly have a better understanding of what bipolar disorder must feel like.

The first two rounds were bad, but at least then it was novel, something new. I thought I'd try different things to see what works, what doesn't. I thought of it as a great experiment, with myself as the subject. Now, after number three, I see clearly the work that is before me. The fun is over. The hair is gone. I have to do this nine more times. We are entering the dark days of winter, and never before have I felt such a need to withdraw, to curl up, to truly experience the dark night of the soul. I go willingly, because there is much work to be done there, and many things to be learned. There is no way around, under, or over. No shortcuts. No portals to other dimensions. There is only me, and a long dark tunnel that must be traversed.