Gardening contains all the Stages of Grief

The initial elation of DENIAL is in the planting, 

scientifically believing that something will sprout

from a seed.   It's experimental magic.

It isn't even time to pray yet.

Outside, I plant straight rows of peas and gently scatter carrots.

Inside, he sets seeds he's saved into tiny black pots 

he has also saved.  They take up space in the dining room, 

while we watch them grow into tomatoes and peppers.

ANGER is reserved for the animals

even though it's not their fault.

Did we build the fence high enough to keep out the damn deer?  

Don't forget to close the gate!  

How many little black flea beetles did he crush

between his fingers today?  It's the tiniest of battles

in a world wide war, but still,

it's ours to fight.  And it's better than fighting each other.

In July, the BARGAINING begins.

What is the one thing you'd sell your soul for?

Hail netting that holds?  A mild mid-summer? 

At least the devil listens.

There's an abundance ready to cut and clean and cook and eat

and I realize I'd sell my soul

for time to go backwards (just for a little while)

and for one single red beet to pull out of the ground.

When you're down to seeds and stems —

that's DEPRESSION.

When the zinnias turn brown and hang their dead heads 

and the tomatoes go to mush on the vine

and we wonder if it's worth it to water.

He says this is the last salad 

I say these are the final flowers

It's October. The hummingbirds have left.

ACCEPTANCE is noticing the purple hues

of what might be the last morning glory, 

not caring if it is the last morning glory.

There are seeds to save.  Maybe

we'll try for some more lettuce,

or clone some tomatoes and peppers.

I'll put dead flowers in the vase he gave me.

He won't forget to put roses on my grave.

who made it possible for you to march?

Who made it possible for you to march?
Tell me, can you tell me–

who filled the salt & pepper shakers
your waiter will twist?
Tell me, can you tell me–

How much of a tip
you left for the immigrant
who made your bed?
Did you think about her as you drifted
off to sleep, worrying about whether
or not the others
would care if you snored? Or was it only
when it came time
to dole out the few crumpled dollars
you discovered in the pockets
of that coat you hadn't worn in ages?

Tell me you will read them more poetry.
Tell me, can you tell me–

Who made it possible for you to march?
Was it the husband or wife who picked up the kids?
The partner who prepared dinner?
The friend who covered a shift?
The teenager you trust enough leave home alone?
Tell me, can you tell me–

what you have inherited from your ancestors?
Tell me, can you tell me–

Who made it possible for you to march?

two things and more

My husband has been gone these past two evenings, leaving home around six-thirty, to be up at his mother's before seven, the time at which the shift of "Bill's Girls" ends...
But that's another story.

Having this time "alone" with my boys, I forget to:
1. think about Dinner,
2. prepare Dinner,
3. clean up after Dinner, and
4. clean up after cleaning up after Dinner.

Don't get me wrong here, my husband appreciates everything (just about) and anything (almost) I manage to get on the table. And likewise. And I really do enjoy it when we all sit down to Dinner, and light the candle, and say nummy-nummies, and talk non-stop about our days. Or at least try to. Usually the conversation does a degenerate doublebackhandspringdismount off the table and into the sewer by the time Dinner is over. Such is family life with three boys.

For the past two nights, though, it's been dinner. Frozen pizza. Michelina's microwaveables, single-serving yogurts, Wheat Thins and cream cheese, juice....whatever else they can scavenge for themselves in the kitchen that requires the bare minimum of preparation. Can't say as I blame them.

Meanwhile, I take a bath. When Bennett interrupts my bath to tell me he wants to listen to Christmas carols, I ask him to ask Grant to put on the Traditional Christmas Carols Pandora station for him. He wants the music on to help him finish up his GT geocity project that's due tomorrow. Grant robotically does what is asked, then returns to his Manga book, which he borrowed from his friend Mika who borrowed it from a friend. In the back of my mind, I think, "That's what makes a book truly good." Even though I could never read it.

You people who have no kids, yeah, I'm talking to YOU! You have NO EARTHLY IDEA what parents and teachers go through during the weeks before Christmas. It's just one deadline and due date after another. Book Project? Check. Final GT project? Check. Scrooge Musical? Check. Orchestra Concert? Check. Concert Band Performance? Check. Poem Memorized? Check. Goodies baked for teachers? Check. Goodies packaged and labeled for teachers? Check. Goodies in backpack to take to teachers? Check.

And those are simply the activities that my family experiences outside the bounds of The Little School. LSV has its own built-in stressor (not counting The Ball and Medieval Day and Robin Hood Family Book Club!): The Beta Quadrant Show. In Three Days. I know what overwhelming satisfaction and happiness will come after we've successfully pulled it off, so it's worth it. But the working up to it....... it's just so much.......work.

After my bath, I plan tomorrow's LSV schedule with an attention to detail that would make someone with ADD proud (because they do, you know, pay exasperating attention to detail. When they want to.).

What was the main idea of this story again?

Oh yeah, I got to spend time with my boys this evening, just helping them with projects, and hanging out. Which brings me to the fact that all I originally started out to say in this blog post is that I would like to share two funny things that made me laugh tonight, one involving each of my sons.

Bennett's gem: Up in his bunkbed, while hugging me good night, he asks, "What, exactly, is the meaning of humbug?"

"It means when you.....you know, when you feel.....well, it means...it means humbug."

Seriously, that was my answer. Good thing the boys thought it was hilarious. Remember when you first realized that some words truly have no definitions? They just ARE? And that to know the word, you have to know so much more than the word? You need its context, its story, its period, its character. Having just played the young man Ebenezer in Scrooge, and actually getting to say "humbug", well... he realized he already knew what it meant.

As for Grant, tonight he finished writing the entire Desiderata in calligraphy. Of course, it's not in any kind of font I tried to teach him, like Carolingian or Gothic. No, of course not. Instead, it's his own script he "invented". Then he refused to use lines under his parchment (ugh!)..... , and refused to start over if he made a mistake (ugh!), but damn! he wrote THE WHOLE FUCKING DESIDERATA in calligraphy! By candlelight. And now he wants to make copies of it, bind them, and sell them at SPQR on Thursday night during the Medieval Fair portion of the show.

Only one small problem while trying to make the copies ... the printer wouldn't work. Grant had just replaced the ink cartridge, and something was wacky. Right at the point when he was most peeved at the printer, I casually, only a bit cruelly, said, "You know, there's a low-tech answer for every high-tech question."

He turned on me as if I were a vampire and he had a wooden stake in his hand. "No. Way. I am so NOT copying this whole thing over ten times. No Way."

It was at that moment, I think, that he truly got the whole "Writing During the Middle Ages" thing. Oh, he knew it on an intellectual level, how monks spent years of their lives copying manuscripts, and about the importance of words and the significance of access to them. But this was visceral. And it was terrifying.

And it was very, very funny.

a letter that turned into a poem

cornered
your pants down
while from your mouth, pain
ricochets
from the wall to the mirror to your second son to me
like khet
with the eye of horus
splitting your 84 years of shit into angry lasers


no longer will i
after 5 pm
endure the bombardment of
vodka-laced two-way tasers
killing
your anubis

words of wisdom

My more-often-than-not awesome husband, while reclining in bed, in response to our discussion of The Chosen in which I said, "You know, that was the first religious book I read that had a profound effect on me", promptly retorted:

"The first religious book I read that had a profound effect on me was Mad Magazine.

a bath and an artichoke

I wish I could express to you how honored I felt to bathe Phid, with the help of the CNA, of course, in the monster jacuzzi tub they have at Pikes Peak Hospice. It is an amazing piece of machinery. To see it in action made me momentarily super grateful to be living in the first world in the twenty-first century.

While I was washing her hair, trying to be gentle, she said, "Oh, Sue, give it a good scrub!" So I dug my fingertips into her scalp, and massaged the heck out of it. Then I rinsed off the shampoo with the shower nozzle and watched the water cascade over her face and neck and shoulders and I could imagine how cleansing that must feel. After a good long bubbly bath, and a washing of the feet, we swaddled her in about a dozen warm blankets, wheeled her back to her room, and applied lotion all over her 83-year-old body. The CNA (also named Sue) and I worked well together, as she is one of those people who recognizes that she is not just doing a job, but performing a sacred duty.

After Phid was all tucked into her fresh linens (the bed seemed to miraculously make itself while we were in the tub room) and about to slumber off, she opened her eyes, looked straight at me, and asked, "What about my arteechock?"

Crap!

She had mentioned wanting an artichoke twice before, and we just hadn't done it yet! I told her I'd go right away and make her one. I'd be back at 6:30. I bought three artichokes at Safeway, while a friend explained on the phone how to prepare and cook them. I had never cooked an artichoke before.

At 6:15 I called her and she answered with a smile behind her voice: "Artichokes take longer than you thought, don't they?" Yes, they do. I told her I was picking Sarah up at 7:15 and I would be there at 7:30 with her artichoke and her daughter!

Sarah and I "set the table", placed the mayonnaise and melted butter nearby, and let her at it. It was a pleasure to watch her hands, as they nimbly performed the duty they had obviously done so many times in the past. Sarah and I shared another. Then John and the boys showed up with grilled Korean steak from a neighbor's barbecue. I tore some of the tender meat into little pieces for her, and she devoured them ever so slowly. Then the strawberries she had ordered three hours ago finally arrived!

After living on toast, a few bites of tomato soup and a few spoonfuls of pomegranate applesauce for a couple of days, this meal was a veritable feast!

because when i say "bunker's cabin", i want you to know what i'm talking about

summer, '09:










It's where John proposed to me. One of the tattered old log books still holds proof of that Labor Day weekend, 1995.

It's where I asked him, "If a bear came and attacked me, what would you do?" and he answered, "Run like hell!" Which at first I misunderstood entirely to mean he would run away, but after a thorough explanation from him, I learned that he meant that he would sacrifice his life for mine.

It's where we took my mom once when she came to visit Colorado. Before she got cancer. We cross country skied for several miles up Burnt Creek.

It's where I spent Thanksgiving, 1998, with friends I don't see much any more, but still hold close in my heart, because they are friends who have known my husband longer than I have.

It's where I baked a pumpkin pie from scratch when I was six months pregnant with my firstborn for previously mentioned Thanksgiving dinner.

It's where we passed the Summer Solstice of 2009, after I had just finished a year's worth of cancer hell. (pics above)

It's where the latest log book now holds entries from my sons.

It's where, during Spring Break of 2010, we froze our butts off at night, skied while the world was advesperating, and tried to forget (for a little while) about all the life changes coming our way very, very soon. (pics below)

spring break, '10:












It's where, next summer, we will return with fishing gear, and the boys will catch some trout while I rest on a log beside Cliff Lake and do nothing but watch and listen to them.

You know, sometimes it's good to question statistics. To closely examine the method behind the numbers. To be a critical thinker. But when somebody I love (Hi, Nancy!) sent me these percentages recently, I just took them on faith. Sadly enough, they just felt correct.

During my father's years on this earth, our nation was at war 13.5% of the time.

During my years on this earth, our nation has been at war 17.5% of the time.

During my son's years on this earth, our nation has been at war 37% of the time.

During my grandchild's years on this earth, our nation has been at war 63% of the time.

To think that our nation has been at war for almost two-thirds of my children's lives is just so..... so..... so..... fucking crazy! And now Obama is committing more troops to Afghanistan. Thirty billion dollars and a year and a half later, where will we be?

As many of you know, my husband spent much of his childhood in Afghanistan and Pakistan as the son of a diplomat. I love to sit at his mother's table and listen to her and John remember. I marvel at the adventures of a young family in a foreign land. Unpronounceable (to me!) names of people and places roll off their smiling tongues and then, somewhere between the first and second martini, it all turns into one gigantic sigh.

I experienced this same phenomenon last month, when my family and I went out for dinner at Rumi's Kabab to celebrate our 14th wedding anniversary. By the end of the night, Shams (the owner) had pulled up a chair, and the boys and I listened to more stories of the glory days of Afghanistan. Again that happiness, as John and Shams shared stories of markets and travels and mountains. And then, eventually, that same heaviness, the profound melancholy of something lost.

I know we can never get the Bamiyan Buddhas back, but I just hope, one day, that the people in that region will know some sort of relative peace. And when they do, I am fairly certain that it will have nothing at all to do with us.

love haiku

love in the same place
not unexpected but still
surprised to find it

growing up is hard to do

I left my 10-year old son home alone (his brother was spending the night with a friend) for about half an hour today while my friend Elise drove me to my car. For the second Friday in a row, I had managed to lock my keys in the car. For the second Friday in a row, a friend bailed me out. Never mind the hows and the whys.

Before leaving the house, I hugged him quickly, told him to practice piano while I was gone, and of course, as always, no computer. He's a good kid. I trust him. I know it is impossible for him to lie to me. He wears guilt on his face like a caricature.

But today, I heard it in his voice. After successfully retrieving my car, and feeling a newfound sense of optimism, I called to check in with Grant.

- Hey, kiddo, I just called to tell you I'm on my way home.
- Ok. Did you get the car?
- Yep. I think I'll stop by Boriello's on the way home and get us a pizza to have during the movie.
- I'd rather have Blackjack.
- Well, I'd like Boriellos's.
- Oh, well.... I guess that's ok with me. Hey, will you call me when you get there?
- Sure, Bug. Talk to you in a little bit.
- Ok, Mom. Bye!
- Bye.

Suddenly, I just knew. The way a witch knows it's Samhain. The way my grandmother knew my father. The way you know without my insulting insertion of italicized adjectives or adverbs.

I've done this before: known things. Mostly with rather exhausting consequences. But this time, it's my own child, and it feels vastly different. I am in control. I know exactly what to do.

Dial up Blackjack. Drive straight home. Don't call.

And then there's that moment when you realize that you're no longer Sally in The Cat in the Hat. You're the mother. And you want the ending to be very, very different.

He intercepted me in the only-area-in-our-westside-bungalow-that-could-vaguely-be-called-a hallway with a hug. The kind of hug that says, "Hi Mom! I'm so glad you're home," while muttering, "Oh, please, please, stop right here... please don't go any further..."

I peered over his head, into the dusk-tinted living room, to the top of the bookcase where my MacBook should be. It wasn't. In the sternest, yet calmest voice I think I have ever managed, I asked, "So, where's my computer?" He hung his head, and stepped aside. I walked straight through the living room towards the faint bluish glow of radiation, reflected on the beige carpet, the orange walls and the back of the recliner. I picked up my computer, returned it to the bookshelf, and said, "Get your shoes on and get in the car."
"Where are we going?"
"Don't ask. Just do it."

I've never seen him move so quickly to comply with an order. On the short drive to pick up our pizza, I asked him why. His pure and heartfelt confession came spilling over to me in the dark from the back seat.

Through sobs and sniffles, he related to me how his desire to play Battle for Wesnoth had led him to "disobey" me. After his story, I really wanted to say something about him not taking responsibility for his own actions! But I couldn't.

I understood.

We talked about addiction, about feeling out of control, about how awful it feels, about solutions. It's so much less threatening for a boy to talk to his mama from the back seat of a car, I think. I let him know the consequences would come later. I actually think I heard him say something like, "Yes, Mom."

He understood.

I made him give the man behind the counter our name. I made him carry the pizza. I didn't open the car door for him when he asked for my help. Once we were home and safely inside the kitchen, I looked him square in the face and said, "Here's the deal. No staying home alone for awhile; everywhere I go, you are going with me. No computer all weekend. On Monday, you can use the computer, but no Battle for Wesnoth until a date that you decide on, and I agree to. Got that?"
"Yeah."
"Good, now repeat it to me."

Which he did, accurately, to the very last word, while successfully interchanging the i's and you's. Without prompting, he went straight to his own calendar (we hung it up just a week ago), came back, and said, "January 15th. Is that ok?" I said I thought it was perfect.

- One last question, Bug.
- What?
- Do you want to tell Dad?
- Not right now.
- Ok. He'll be home in a few minutes. Let's make it like a party in here!

After that, I didn't need to tell him a thing. He put the pizza in the oven, and set the oven to 250. He put his shoes and coat away. He cleaned off the coffee table (no small feat) and laid out 3 plates. With napkins! John arrived home. Grant gave him a big hug, and asked him what he wanted to drink. After he had poured the juice and set the pizza on the coffee table, he asked us each what kind we wanted, and served it up.

The Two Towers began, the three of us snuggled up on the couch together.

It was, perhaps, an over-eager and childish attempt at atonement. Yet it was also natural and beautiful and mature. We crossed into new territory today. I can't believe I get the privilege of watching my son grow into a man.

i could listen to her all day

happy frickin' anniversary

June 23, 2009
Last day of a 30-day course of radiation. No Problem! Piece o' cake compared to chemo! Feel great! Garden sprouts! Hair and a Tan! New pink bicycle! Summer! Dancing!

REWIND (cue scratchy backwards record sound)

July 24, 2008
Husband informs me (as soon as I am all happy-dreamy-post-orgasmic) that he felt an abnormal lump in my breast while we were having sex. He shows concern. I choose to go into instant denial, and don't even dare look at or touch myself until the next day.

July 25, 2008
Leave for a two-night camping trip near Princeton Hot Springs for the weekend. Spend the time soaking and hiking and trying not to touch it or to worry. It's the weekend, and figure can't get in to see the doc 'til Monday anyway. Still in denial.

July 27, 2008 - late Sunday night in my own bed after two nights of camping
Cry. Because I know.

July 28th - early Monday morn
Call to make an appointment with Dr. Zirkle, my young and handsome PCP. He's not there, so I see a woman NP who fondles my right breast with a questioning look on her face. Don't remember her name, but she makes an appointment straight away for a diagnostic ultrasound the next day. Call Sara on the way home. Cry. Pick up boys at the Burkles for what they thought was a playdate.

July 29, 2008
Diagnostic ultrasound. Suzanne shows up. I thought I wouldn't need anyone. It's just a little test, after all. Glad she's there, after all.

"Right breast diagnostic ultrasound dated July 29, 2008, shows a dense breast parenchymal pattern with an abnormality corresponding to a 2.1 cm cm in greatest dimension, hypoechoic lesion with irregular margins." Oh crap, a whole new vocabulary to learn; the exact one I never ever wanted to learn. They want to schedule a needle biopsy next week... the only way to know for sure if it is cancerous or not.

Hysterically, tearfully, tell whoever will listen that I DON'T HAVE TIME! BY THE TIME MY MOTHER WAS DIAGNOSED, SHE WAS AT STAGE 4! DON'T YOU GET IT PEOPLE?! I DON'T. HAVE. TIME! Get biopsy scheduled for 31st.

Dammit, I think to myself, here we go...

July 30, 2008
Wait.

I decide to tell no one else until I get the biopsy results...no sense worrying others about something that may turn out to be nothing. There's a pretty good chance, I keep telling myself, that it might be, you know, like a cyst or something.

Get mad at husband for telling his mother, because I don't want her to worry about me. Then quickly realize that he needs someone to tell as well.

July 31, 2008
I return for an "uncomplicated" ultrasound-guided needle biopsy. John comes with me this time. I learn another new vocabulary word: Axilla. Think it would make a great name for a Sci-Fi badass female character or a Derby Dame. Learn it's really just a complicated word for "armpit". Still think it would make a great name.

July 31-August 5th
Wait.

Try to do the laundry and talk with friends and read to the boys before bed. Every day is an eternity. I remember a band called 'Til Tuesday. I just have to make it 'til Tuesday. Because that's the day I'll get the results.

Spend my waiting days with a 2 cm secret, a stoic smile, a welcoming kitchen table and an even-keeled telephone voice. I am not one for holding in anything, so this is a particularly difficult time for me. For once, I ask more questions of others, instead of talking about myself. Lying in bed at night, I barely hold on to my sanity. Give me chemotherapy any day over this hell of not-knowing!

Saturday, August 2nd, 2008
The second anniversary of my mother's death from breast cancer. I'm invited to what sounds like a lovely garden party, but I just can't make myself go. I can't believe that the world keeps spinning, that people keep going to work and making love and having parties. It just doesn't seem right.

Morning of August 5th, 2008. Tuesday.
I know the moment the nurse opens that door into the waiting room and calls my name. I can see it in her face, hear it in her voice. John and I stumble through the door, take a thousand steps down the hall, and are ushered into a tiny conference room on the right. The wonderful, motherly, optimistic ("this doesn't really look like cancer") radiologist who performed the biopsy all those years (6 days!?) ago isn't in the office today, so a man who knows absolutely nothing about me presents me with a huge white binder and these words: "You have invasive ductal carcinoma." Just like that. They don't even say cancer. Bastards.

Afternoon of August 5th, 2008
In order to occupy my mind, I try and accomplish some menial household tasks. I empty the dishwasher, slowly, dish by dish, taking note of each one, how it feels in the hand, how it shines in the light. After that, I simply end up pacing the house or lying on my bed. Doing "normal" things takes on a surreal edge. A hyper awareness permeates my every move, every step, every breath, every word. I am restless, and in shock, and don't know what to do with myself.

Evening of August 5th, 2008
I call Mike Carsten to see if he is working. He is. I ask him to make me a Cosmo and tell him I will be there soon. John stays home with the boys. I predict this will be the first time I ever sit at a bar alone and tell the bartender my problems. When I walk in to 15C, I am somewhat relieved to see Bettina and Aaron sitting at the bar. I sit down in front of my drink, and ask Bettina for a cigarette. After a slow sip and a deep inhale, I look at Mike across the bar and utter, matter-of-factly, "I have breast cancer." That singular moment will be etched in my brain forever.

Sara shows up. I drink another pink Cosmo. Bettina tells me I have a "pass", so I smoke one more, or maybe several more, of her pink Camels.

August 6, 2008
My first day of school. I am hungover and miserable and sitting in a meeting at 8 am. At least my boss knows, as Sara had the forethought to call her from the bar last night and tell her.

I want to drink and throw beer bottles out into the street and hear them crash.

July 31, 2009
So you see, here we are now, exactly a year later. From the end of radiation until about a week ago, I felt like a million bucks. Reborn. Then last week, emotions (but not necessarily memories) began surfacing, unbidden, and at inopportune and unexpected times.

Perhaps I felt them more because we were on vacation, relaxed, and I was more in tune with myself and not engaged in the daily duties of home.

In the "tummy of the Earth" (as Grant called it-otherwise known as Wind Cave), my body went into shock, and I cried for the stillness and the darkness of it all, yet happy in the knowledge that our complex planet has no concern for our trivial human problems.

My anger resurfaced for no apparent reason one morning at the Coach House (John's childhood vacation home in Wisconsin). In the process of making scrambled eggs, I went out onto the porch and threw an egg at a tree with every bit of strength I had. To hear it splat gave me great satisfaction!

While riding on country roads, I felt again that hyper awareness, that surreal edge. I felt as if I could ride forever among the cornfields and silos and old cemeteries.

Now I'm home. The summer is coming to a close, and another school year is about to begin. My mind and body are sorting out the events of the past year.

Welcome to Year 2.

The Color Pink

I have reconciled myself to the color pink. This pink. My new bike pink. The color my hair might be in a few weeks, if I can find the right shade of pink. The color of Olwyn's pink tiara I wore at my Done With Chemo Party. The Pink Brick Box my boys bought me for Mothers Day.

The bike is a new cruiser, fashioned to look like an old one. I drove past it every day on my way from school to radiation at the end of May. Finally, one day, I stopped. Test rode (this pic). Bought. No deliberation necessary.

It makes me happy to ride it. Happy to go at the speed of one speed. Happy to be a Rose Parade, with myself as the only entry. Happy to throw everything into the front basket (purchased later) and just go.

Today, I filled my basket and headed out to do some errands at about 4:00 pm. First stop, the post office, where I mailed my husband's 12-inch braid to Locks of Love. Two nights ago he let me cut it, and shave his head with the 1/2 inch attachment. Wow. He's had that hair for 20 years. Now he has hair that looks like mine.

While at the post office, I left the bike unlocked, but it was out of sight. A real lesson in trust. I only got out of line once to check on it. But I refuse to lock it up everywhere I stop, because it's impractical! Especially if I've got four or five places to get to before dinner.

Next stop: The Medicine Shoppe on Colorado Ave. I parked my bike out front (it has a kickstand!), and carried in my wallet and new scrip for Tamoxifen I had gotten from my oncologist earlier that day. While waiting, I decided to browse The Bookman. The pharmacist said the bike would be safer in front of his store, and he could watch it for me. When I came out of the bookstore and looked towards the pharmacy, my bike was nowhere to be seen! For a brief nano-second, I feared the worst. But when I looked in, there it was, parked in the middle of the pharmacy. The pharmacist had brought it in! I love my neighborhood.

I placed the bottle of pills in my basket, as well as the book I had picked up for Bennett for two bucks, and rode off towards the garden. We have a small but useful plot in the new Old Colorado City Community Garden, which is about six blocks from our house.

At the garden, I discovered new locks on the gates, and it just didn't feel quite right. They were definitely not Locks of Love. They felt like locks of exclusion. Even though we've got a deranged crazy lady roaming through, picking onions, and calling people names, that still didn't seem like reason enough to put locks on all three of the gates. Anyway, after calling Elise and getting the combo, I went in and picked some spinach and some greens, which I placed in a plastic container I had brought with me. Again, in the front basket of my unlocked bicycle. Needless to say, the salad I made for dinner, with some boiled eggs on top for protein, was second to none.

Baskets on bikes are not "cute"; they are PRACTICAL! It's so easy to just throw in what I need, and pedal out the driveway. No special shoes or dorky neon shirts with pockets in the back. I prefer skirts.

At some point in our recent history, "biking" became a sport, and not a way of life. I hate exercising, but going to the post office, the pharmacy, and the garden (I was also going to return a book to the library, but my neighbor I stopped to talk to was on her way there and said she would drop it off for me) on my new pink cruiser is just fun. I look for a reason to ride it every day.

I have a lock for it, but I lost the directions on how to set the combo. At some point, I will call the bike shop and have them help me figure it out. I will most likely use it if I park downtown and have to leave the bike for a few hours (yoga, for example). Until then, I will continue to roam the Westside lockless. With love. Like my husband.

overwhelmed by goodness

The past week or two has been jam-packed with amazing experiences. I marvel sometimes at how so many good things can happen in such a short time! Life has found me smiling more often than not these days....

A simple yet thrilling four-hour rafting trip down the Arkansas River returned my lost sense of strength and bravery. The next day, I wandered alone around Valley View Hot Springs until I found the pool where John and I sat nearly 14 years ago on the day before he proposed.

A week ago Friday, I had an amazing "love from strangers" day.... I held drawings of me and my mom in my hand, sketched by a woman who had seen our pictures on the blog. I received a bracelet with the word "HOPE" on it from another radiation patient. Later that afternoon, I met a woman in King Soopers who said, "I made your skirt."

Last Sunday night I hiked half-way up the Sand Dunes with two friends under the light of the full moon.

Yesterday, I took the time to teach my boys how to make scrambled eggs and french toast, instead of just doing it for them. Cooking is so much more than just food.

This evening, I danced barefoot on green grass in the pouring rain to the sound of Quetzal.... some cuban-latin-funk-fun.

Each one of these events would be worthy of its own blog post. Filled with details and photos and lessons learned. The problem is, I never seem to have enough time to reflect and write about them, because each and every day is filled with something special and magical. And I can't seem to choose which event is most worthy of a story. And I don't have time to write them all! I really shouldn't complain about this abundance, of course, but it's getting frustrating that I never seem to sit down long enough to actually record and reflect.

What to blame it on?

Facebook? That's an easy scapegoat.

The end-of-school-year/beginning-of-summer/middle-of-radiation madness? Perhaps.

Mostly, though, it's this strange feeling that if I can't share it all, then I shouldn't share any.
This needs to stop.....

....... Oh yeah, did I tell you about the purple penstemon and prolific peas? Or about how I swam 12 laps and did a back dive at the pool today? Or about the pleasantly slow speed of life on my new pink cruiser? Or about the fact that I have completed 23 out of 30 days of radiation?

on the origin of inspiration

I'm not sure if it's because I'm feeling overwhelmed by the passage of time, or if I'm just damn lazy, but I feel like reposting this picture and quotes, from two years ago today. If you know my husband, you will know that he is never at a loss for words when it comes to the topic of Evolution. It is his pet. His purpose. His motivating force. His life's work in his Biology classes at Pine Creek High School. Honestly, I get tired of hearing about it, but I respect him for the passion and the knowledge he brings to his profession. If I had had a science teacher like him when I was in high school, I very well might have enjoyed it. So here's to Charles Darwin, and here's to John Spengler, and here's to a new administration, with all its ugly imperfectness, that at least understands the importance of science.

"Doing what little one can to increase the general stock of knowledge is as respectable an object of life, as one can in any likelihood pursue."

HAPPY BDAY MR. DARWIN!


"Ignorance more frequently begets confidence than does knowledge: it is those who know little, not those who know much, who so positively assert that this or that problem will never be solved by science."

for swiss miss

As I lie on my back clothed in yet another paper gown, I stare at this man sitting on the stool next to me. I voice my feelings, for some reason, out loud to him: "You know, I actually WANT you to find something wrong... Isn't that strange?"

"No, not at all. You want it to be wrong, just not wrong wrong."

Exactly. I want an explanation, a reason, a diagnosis. I just don't want it to interfere with, you know, like, the rest of my life.

What I want him to answer for me is WHY, a day after my first Taxol chemotherapy infusion on January 5th, the tips of my fingers were so agonizingly painful that I could neither sleep nor pull up the happiness-inducing-flowery-over-the-knee socks sent to me by Cindy. You know the tingling in your fingers as they just begin to warm after the bitter cold? Or the momentary pain when one of your extremities has fallen asleep and is just beginning to awaken? It was like that, in all 10 of my phelanges, only it raged on nonstop for nearly 48 hours. Everyday activities were next to impossible: holding a pencil, turning a key, buttoning a blouse. Over the past two weeks it has subsided, and there now remains only a faint sensation, reminding me that I can't quite trust my finger tips the way I used to.

And so I was released from reporting to poison chair duty last Monday. It was, at that time, a huge relief. My oncologist sent me to another doctor, a neurologist, who ordered some tests to be performed by yet another doctor the next day. Their task is to find out if I have inherited CMT2 from my father, which may explain my reaction, and to generally assess the state of my nerves.

When I first enter the room, I am surprised by the tiny machine sitting along the wall. It's the size, shape, and color (baby poop beige) of a computer from the beginning of the computer age. It looks like a hand-me-down you would have found in a Boys and Girls Club 15 years ago. Four heavy-duty black knobs adorn the front. I realize that two weeks ago, my fingers would not have been able to turn them. Along the right hand side, assorted electrical cords in different colors are dangling like instruments of torture.

I put on the aformentioned gown, and sit, as comfortably as is humanly possible in a giant paper napkin, on the table.

And then the doc walks in. Jesus Christ! He fucking MATCHES his machine!

Short, balding, a combover complete with graying sideburns and a graying mustache. The blues of his striped oxford clash horrifically with the blues of his too-short whale tie. He reminds me of a man my mother might have dated in 1975 when I was eight. He is uncomfortable in his own body, uncomfortable with mine, but happy while squinting in front of his little machine and pinching the little electrical wires between his fingers.

I wonder, as he shocks the sensory and motor nerves of my arm and leg into spasms with little bolts of electricity, if he enjoys his job. Wonder what kind of pervert becomes a doctor who enjoys shocking people with ancient technology? I'm willing to bet he played Operation as a boy and got some sort of perverse pleasure when his tweezers didn't quite make it out safely. ZAP! He probably took apart the family's AM radio, just to look at the circuitry.

To take my mind off the fact that (ZAP!) this anachronistic man is attaching electrodes to my extremities and making my body convulse in a way that is completely out of my control, I stare at the ceiling. My mind floats back to all the (ZAP!) other machines (ZAP!) I have encountered over the past six months: the new digital mammogram, the ultrasound that guided the needle to the tumor, the MRI with its strangely melodic hums and whirs, Lynn's radiation laser monster, the beep-beep of the IV when the chemo was all dripped out. Then a small tear forms and (ZAP!) threatens to escape, because I am imagining the rest (ZAP!) of my life filled with the pricks of needles and the noises of machines.

And so, to take my mind off my uncertain future, I begin to count the little squares of the heater vent directly above my head. (I used to count lights and lines and pews and people in church as a girl to keep me occupied during the service; I think counting must be my own personal religious practice). There is nothing else in the room on which to fix my gaze. No pretty tulips, no inspirational messages, not even any comforting diplomas. The walls and ceiling are bare, the same color as the little bald man's electricity machine.

Eighteen squares across. That was easy. (ZAP!) The length, however, proves to be a bit more difficult, because me eyes are blurry from the tears, which are as automatic and as uncontrollable as my fingers and toes are at the moment. I begin counting, but have to blink, and lose my place in the cold gray metal, which I think must be as old as the doctor, as old as his machine, as old as I feel. I start over again. Blink. (ZAP!) Lose my place. Begin again. Keep my place this time. Keep counting. 42! My age. I don't believe it, so I start over. This time I am successful on the first try, having mastered the technique of holding my place while blinking through tears. It's a skill I realize would come in handy in so many other areas of my life. 42 again. Yes. Something about that just makes it all ok all of a sudden.

In the end, he finds nothing wrong. But, as he reminds me, that doesn't necessarily mean there's nothing wrong. Damn stupid inclusive fucking test bullshit! He explains in metaphors (all good docs do): "It's like if you have a water pipe, and it's only slightly clogged, the water still runs through it. We're testing the water flow, not looking inside the pipes."

So I still have my nerves, at least 90% of them anyway. They still sense and feel and conduct and react. But the Taxol did something to me that day. Something unexplainable. Something excruciating.

After I was dressed, the 1970's doctor with the 1970's machine handed me a copy of my report and explained that, from his findings anyway, he saw no reason to discontinue the Taxol. In short, there was nothing "wrong wrong". I think I am glad about this. Don't get me wrong, being 100% finished would have been nice. But in so many more ways, having to quit now would be, not just wrong, but "wrong wrong". I CHOSE to do this. I want to finish it. I want to be able to live my life, after cancer, knowing that I did everything within my power to make it leave me the fuck alone. I have finally learned, after surviving the hospital and reading this book, that ten more weeks of my life filled with chemo is not something I can't handle.

I've wanted to quit before. After three treatments, at one-fourth (a million years ago) I sobbed inconsolably for hours one night, wailing to my husband that I couldn't do it, this chemo thing. Now that I'm on the other other side of one-half, with the end in sight and 5/12 remaining, and they're telling me I might be done, I find myself, ironically but understandably, wanting it MORE!

I don't know what my oncologist, the dear Dr. Hoyer, into whose hands I have placed so much faith, will say when I see him a week from today. Whether or not he will want to "re-challenge" me with the Taxol or not. I have a feeling he will, as he has done from the beginning, lay all the facts on the table and let me decide. If he does...... bring it on, I say. Bring it fucking ON!





PS. Funny thing is, in order to write this post, I also went, in the words of Marc, "back to analog form". My beloved MacBook was in the process of being repaired, and I was forced to put pen to paper. While writing the above words, I was sitting on a patio on a nearly 70-degree January day, sipping Cuban coffee, stripped down to a tanktop and exposing my bald head to the glorious sunshine. Totally worth it. Sometimes you have to go backwards, in order to go forwards.

number musings

A friend and I have made a pact to live until the year 2049.

In 2049, I will be 82.

I am 41 now, which is 50% of 82.

I am half-way through chemo. Six-twelfths. 50%.

My husband just celebrated his 50th birthday. One of his friends called it, in youngster-hip-speech, "Fiddy".

My mother-in-law's nickname is "Phiddy". She is 82 right now.

According to the computer-calculated data, I have an 82% chance of living 10 years.

Forty-two and seven-twelfths..... here I come!

ask dr. science

My house is a fucking wreck. The kind of wreck that happens when you sat through chemo on Monday, had an activity or two every night of the week, and before that you decided to get out all umpteen green and red plastic tubs from storage late last Sunday afternoon so they're still all half-unpacked in the middle of the living room.

My life on this beautifully snowy morning has been reduced to moving things from one place to another, in the hopes of some semblance of order.

During my shuffling, I very nearly threw away something rather valuable. It's a note written on the back of a "Student Pass" (more affectionately known at my child's school as a "purple slip"):

Dear Mr. Jon Spengler,
I have a questchon. If the world fliped all at once woud we feel it?
Please let me know. I am one of bennett's frends. Thank you.

Following this, there is a crude drawing of the earth with "Antarctica" labeled at the top.

I imagine he (or she) asked the question in class, and Bennett eagerly proclaimed, "Ask my dad. He'll know." Trusting my son, the child very respectfully wrote out the question, Bennett put it carefully in his backpack, and then it entered the chaos of my house, where it could have been lost forever.

All I know is that there's a first, second, or third grader (Montessori classrooms are multi-age) out there somewhere wondering (worried?) about what will happen if (when?) the earth flips over.

I'm going to make sure he gets his answer next week. I want to know, too. But what I really want to know is: If the world flips over, will the contents of my living room magically shift into place?

triskaidekaphilia

He loved her
for almost
everything
she was

& she decided
that was enough
to let him stay
for a very long time

Today, we have been married for 13 years. My parents' marriage broke up in its 12th year. My father's second marriage broke up in its 12th year. My brother's marriage broke up in its 12th year. I'm not saying we're special somehow, or better in any way. I'm just saying that 13 is now a very special and significant number to me.

I have never really been afraid of the number 13, but today I am truly in love with it.